• Rolltidelynne's Avatar
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    Rolltidelynne posted an update

    Greg's update about being blessed compared to others suffering worse than us is absolutely correct!
    I'm sorry I've been out of touch here for quite awhile. I've had some issues n responsibilities that I had to deal with. Glad to report most of those are resolved and good:)
    I do need to let y'all know ( those I've gotten close w over the years:) y'all know who y'all are!!) that I'm not in remission any more. I start a new regiment of rounds of chemo this week once ghe meds are squared away. It was discovered in my body bone scan. The protein in my blood had elevated n gone down back in forth which gave the Drs concerns n they ordered the scan. The MM returned in my right arm. I'm not surprised since I had been having unexplainable pain in my right hand, remember? I had test after test run n it couldn't be diagnosed?!?! Well anyway that's my theory lol. I'm going to be taking revlimed, velcade ( pill not IV) n of course dexamethazone 3 weeks on /one week off. But I'm back if anyone needs me:))) I've missed y'all!!!!!

    3 Comments
    • DonnaSue's Avatar
      DonnaSue

      It's good to see you post again, Lynne. I'll be praying for you. The last time I called the nurse for my numbers she hesitated, then said it was good. So, I got a printed report and my Kappa is in normal range, Lamda is in normal range, but the ratio is creeping higher. I don't know what that means. I'm moving to a new area in a few weeks and will have a new doctor, and I will quiz that doctor about my own results.

      about 3 years ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I was so happy to see your name on a post, Rolltidelynne! I am not happy to read this update that your cancer is back.

      I will be praying for you and your doctors and hoping you go back into remission soon.

      about 3 years ago
    • jessey's Avatar
      jessey

      Glad to know you are again reaching out. True confession is good for the soul. I was toLD I was also in remission as it turned out I was not in complete remission. Decided to take a medication free, lasted all of 4mo.amf showed, up fiercely n another area, went 14 radiation treatment, only to be put on Revlimid/dex combo, then rediscovered both femor bones both pelvic hip joints need extensive, help, the he!ontologist, say it out of her league and refers me to a oncology social worker, and mental support.
      Guys I am like 2 years into this, all I wanted was a small window to normal, finding out there are no days off from this, I feel like a victim of domestic violence some day, scared to leave home alone, cannot visit places with steps, starting to wear depends.
      Lynn, you are resilient, you will do what you need, I gain a lot from your post,. Judy from the south, good looking in, sorry it took so long / I was trying to act like a grown up

      about 3 years ago
  • Rolltidelynne's Avatar

    Rolltidelynne posted an update

    Hi everybody:) Sorry I've been away from here a little while, it's been a little cray cray. A few short updates- first I feel great:) Went to my drs Thursday. They ran several tests, pics, etc - I've lost 1 1/2 inches, having trouble w/back curvature n it hurts:( they are fitting me for a brace- a few discs are breaking down n worried about compression. Also increased my MEDS CUZ I've built a tolerance. Easy fix. Next, I have neutrapenia. Trying to stay on revlimed- just have to wait n see. Have any of YALL experienced either change w your bodies?!?! I'm not upset, not worried but of course my daughter is! Ugh ( she worries bout everything!) Should I tell my sons? One lives far away. I'm just not sure if worth bothering them?!?! Thoughts?? Thank YALL, I've missed YALL!! Happy ❤️ Day:)

    6 Comments
    • BoiseB's Avatar
      BoiseB

      Happy Valentines. So sad to here about your back. If any part of your spine hurts your whole body hurts. Will pray for you at church today

      almost 4 years ago
    • Kebohs' Avatar
      Kebohs

      Feel better. It's not easy dealing with a painful back. Many blessings

      almost 4 years ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Hi Rolltidelynne!

      You have been on my mind today and I realized I haven't seen any posts from you in a long time. So, I dropped by your page ... and came across this update. I'm glad it is overall a positive update ... though it does sound like you're having some problems!

      Still, I am glad that you sound happy and content!

      Please drop by and visit with us from time to time!!!

      over 3 years ago
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    Rolltidelynne started following

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    Rolltidelynne asked a questionMultiple Myeloma

    Dealing with VERY HURTFUL comments

    31 answers
    • meyati's Avatar
      meyati

      Stay out of the counseling-you don't need this additional stress and emotional baggage. #1 your daughter needs to talk freely-and this might include feelings and actions of your sons and yourself. A daughter says that I was abusive because I didn't buy her white patient leather Mary Jane shoes. She was 10, and we lived in a rainy swampy area of Georgia with red mud everywhere. The only girls that had these shoes were future debutantees that had a "Mammy" to follow them around and clean up. Counseling can be extremely emotional-and not all counselors are not equal or like what we see on TV. Some are idiots.

      How many psychiatrists does it take to change a light bulb? None, because the light bulb must want to change. Why do people stop smoking, gambling, or another destructive behaviour? They are ready to change. They have a goal, a vison of the future-and they kick whatever it is. Your daughter must want to change. That's why I keep saying you should ask her what is she going to do about it? Some of the others seem to be talking about an intervention-that's fine. But I worry about your health and nerves, if you are in the intervention.

      almost 4 years ago
    • BoiseB's Avatar
      BoiseB

      Lynne I keep being bothered by the words "he can't wait for you to die" and your mom is going to die" these seem to be threatening. I would be very frightened about this. These things have a way of escalating from brushing you "accidently" with live cigarettes, to "accidently tripping you on the steps followed by a comment on how clutsy you are. It takes no time for this to develop into a broken face and dislocated jaw.
      I would not be alone in the house with him. Notify a friend or neighbor when he comes to visit.
      There are those here who say you should blow your daughter off. I know you cannot and if you did it would cause you more stress. You don't need to take your daughter with you to get support. (Notice I said SUPPORT not counseling ) Is there a support group in your town. If not that is there a hotline. People on the hotlines have some training but most of all they have experienced what you are going through

      almost 4 years ago
    • meyati's Avatar
      meyati

      You say that he never directly says these things to you, but your daughter says that he says these things. Do you actually hear him saying these things? Just wondering- this is a cruel thing to say- but maybe he doesn't say yhrese things.

      Boise is correct about problems-but I will add they could come from either him or her. I met a nurse that had about 6 sisters. The mother, in her 80s, complained that sweet loving Dad pushed her into the corners that stuck out. He'd say that he tripped, she hurt herself..She claimed that he shoved her when she had to step up or down on the few steps. Only one daughter took her in. They couldn't believe that he wrapped his hand in a towel and slapped her on her body- hardly any bruising. I came in with a useless right arm, because my husband wrapped his hand in a towel and punched my breast biopsy that caused the RSD.. The bruises showed up about 2 weeks later when he was out of town. I told how I would find a corner to do crunches, push ups, etc. And he'd walk towards me and step on me or kick me. He'd smiile and say that he was sorry-he tripped. The nurse told me about her mother, and the doctor explained that lots of abuse is preplanned. Not done in an anger fit, no alcohol, no fight, and he treated many older women that were treated this way by a spouse or their children. She grabbed the phone and called her sister. She asked forgiveness, and if she could go over that night and make peace with her mother. People think that old women are making it up, making excuses for the legs not working right- meds, etc. So, be careful of both of them.

      almost 4 years ago