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    rubio asked a questionBreast Cancer

    Neuropathy..How Long after chemo does it last?

    27 answers
    • papabill's Avatar
      papabill

      Just an update: I completed my 12 sessions (6-1/2months) of post-surgical FolFox chemo (oxaliplatin) in August 2013 and still have the chemo-induced peripheral neuropathy in my feet and slightly in my finger tips, which commenced after my 10th session. For me at this stage my toes feel like they are wrapped tightly in rubber bands/duct tape and the balls of my feet feel as if they are swollen (they are not), especially pronounced when walking . There are nights when I try and go to sleep it then feels as if my toes are being squeezed in a vise. While I do not have the typical neuropathy symptoms of burning and pins and needle stabbing as depicted in the commercials, most times it is livable except I cannot run with the grandkids like before and then on those many nights it really flairs up with that squeezing that prevents sleep. Overall I have been taking high dozes of Alpha Lipoic Acid (1,200mg) along with folic acid and B6, B12, B complex, but have not seen any improvement. The best for me has been on the nights when the feet feel so squeezed is to take 25mg Ambien and after about 30 minutes or so it kicks in and eases the feet enough for me to get to sleep. My oncologist also said if by now there has not been any real improvement, it is most likely permanent. For others the chemo-induced neuropathy does subside within a couple of years. Hopefully it will be for you, too. They say chemo is the gift that keeps on giving. And it seems for me they were right. Keep the faith.

      almost 3 years ago
    • Connielt's Avatar
      Connielt

      My oncologist nor the nurses ever explained the vast side affects of chemo nor the numbness to my feet, hands and my imbalances or the blackened feet affect. My nails are about to fall off too. I always thought that cancer victims were extensively counciled but I never witness that. If I didn't persue my issues I wouldn't know. I am thinking of making an appt with Nuerologist to find out how best to deal with my issues. I've been in remission since April 25th and thought I would be a lot better by now.

      4 months ago
    • papabill's Avatar
      papabill

      Connielt,

      Saw your posting today relative to your chemo-induced neuropathy. I am over 4 years post-chemo and still have the neuropathy in my feet and fingers. I was told by my oncologist at that time that for some the neuropathy can diminish after about one year. After that, if no improvement, most probably will be a life-long condition. I tried taking specific supplements that were to potentially off-set the neuropathy; specifically alpha-lopeic acid and a series of b-vitamins along with folic acid. I tried them for several years and for me no avail. I then tried acupuncture, again no improvement. But, there have been studies that have shown that in some these do work. Yes, you are so early in post-treatment so you just might be one of the ones that will find that spontaneous relief within the first year or so. But, certainly do consult with your neurologist and gain input as to any suggestions made; ask about the supplements and acupuncture too. You may learn something the rest of us do not yet know and can pass along valuable input. You are right, one must advocate for themselves. As they say, chemo is the gift that keeps on giving. Keep the faith.

      4 months ago
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