• Homans' Avatar

    Homans wrote on Ruby49's wall

    Hello Ruby,
    I went through NHL - Double Hit, which is a very aggressive variation of non Hodgkin’s lymphoma. I was diagnosed in February of 2019. I went through and failed two chemos, and I got the new CAR-T Therapy in June, and have been in remission ever since, so if you have a teaching school near, like KU, that can administer CAR-T Therapy, I would highly recommend googleing and looking at doing that. I think CAR-T has been approved now as a second line treatment. In other words, I had to fail a first and second line chemo treatment, before I could get CAR-T as a third line treatment. I never could get to the BMT stage because my cancer didn’t respond to conventional chemo. Most people with NHL respond to conventional chemo, but I was in that very low percentage that didn’t, but I did respond immediately to the CAR-T. You can google CAR-T or check it out on the Kansas University’s (KU) website to read more about it. CAR-T can give you a shot at a cure, and not just managing it with chemo and bone marrow transplants, but it comes with risks, but they were worth it for me. Hang in there and I hope you have a speedy recovery. Steve H.

  • GregP_WN's Avatar

    GregP_WN wrote on Ruby49's wall

    Welcome to the WhatNext Network. We're sorry for the reason you have to be here, but happy that you've found us. WhatNext is a fantastic place to share your cancer experiences by filling out your journey/diagnosis profile, and by asking and answering questions on the Questions page.

    If you need to know something please post a question. Our blog page is also a great resource for newly diagnosed patients, survivors, and caregivers. We have hundreds of articles covering any topic you can think of that concerns cancer patients.

    Drop by the questions page and post a question on anything you are dealing with and lots of people will have input for you.

    All of us on the WhatNext Team wish you the best through your journey and want you to know we are here to support you along the way. We are nothing more than a group of cancer patients, survivors, and caregivers that get what you are going through.

    4X Survivor
    American Cancer Society Voice of Hope
    WhatNext Community/Social Media Mgr.

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  • DaveWaz's Avatar

    DaveWaz wrote on Ruby49's wall

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    Founder, WhatNexter