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    Ruthannsmith wrote on dollie367's wall

    Sounds like you're where I was about a year ago. I am 61 and Stage IV with LMS also. I had two surgeries followed by chemo. It was a tough time, but now I've had 2 clear scans so I'm beginning to feel normal both physically and emotionally. There is light at the end of the tunnel, but it takes awhile to get through! God bless you. I'll be happy to answer any questions since I'm just a little ahead of you in this journey.

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    Ruthannsmith wrote on anskysue's wall

    I was diagnosed in Dec. 2012 after laprascopic hysterectomy. Subsequent open surgery showed a few tiny spots, which were removed, along with cervix and lymph nodes.Lymph nodes were clear, but spots made it Stage IV. I finished chemo in Aug. and have had NED scans in Nov. and Feb.
    Most of the time I'm able to live in the moment, accepting my good health for what it is. I sometimes slip into what if mode, but my faith in God is strong, and I trust him to be with me every step no matter what the outcome.
    I hope you have a support system;however, if ever you need to vent, I'm here.
    God bless you!

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    Ruthannsmith asked a questionEndometrial (Uterine) Cancer


    4 answers
    • catmoy's Avatar

      I was diagnosed with leiomyosarcoma in Mat 2013. I've had sex rounds of gem/ tax chemo and get my first post chemo scan next week. I live in the SF Bay Area. I'm new at this, but let me know if I can help.
      God bless you. Stay strong.

      over 2 years ago
    • chaffinch's Avatar

      Hi Ruthannsmith.

      acor.org has a listserve for LMS. I have ULMS as do many others on the listserve. acor.org has been the best source of information that I have found since my diagnosis 1-13.

      over 2 years ago
    • karen92115's Avatar

      I was diagnosed with uterine leiomyosarcoma in May 2010. Full hysterectomy at that time. No treatment, just quarterly PET/CT scans. Metastasized on both lungs in March 2013. Three months with gemzar/taxotere. No luck. Two months with Adriamycin. Some shrinking of tumors. Two more months with Andriamycin. Tumors grew. Started Votrient on March 3rd. Scans in July, so won't know anything until then. I live in San Diego. I recently found What Next, but would love to help if I can. Prayers go out to you.

      over 2 years ago
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    Question: leiomyosarcoma