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    User: believer

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    User: MarnieC

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    User: SusanK

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    rykardk posted an update

    Hello to everyone. I have not been back on here long enough to write an update. I am awed by all the support on this site. When we are going through something like this it is easy to not make the effort to share, or care for anyone else. So I am pleased there are wonderful folks out there to help keep our spirits up. God bless each and every one of you.
    I had my second cycle of chemo on Nov. 1st. This round was not as nice as the first one. But today, I am about back to normal. Still give out of energy really fast, but just take more breaks. So all in all, I am happy with my progress so far.
    I had my husband shave my head this morning. It was so wispy and patchy, and when I wore hats, it would make my head sore. So decided to get rid of it. I cried as I sat on front porch and he used clippers then electric razor to even it out. I cried when I first saw my new look in the mirror. It's not that I am vain and worry about what I look like, it's that I have no control over this, or I think that is it.
    But I will get through this, and I get to wear cute hats and scarves that I would have never worn otherwise.

    2 Comments
    • janstar47's Avatar
      janstar47

      ** I so identify with you; felt the same way. I had my hubs use clippers and just get the job done. I had same reaction looking in mirror; knowing well, this is reality for sure. A lady made me a bunch of hats; and they are loose fitting if I want, or tie them more secure. I did spring for a wig which looks much like my own hair. Would you believe I have a fair amount of hair still there as it is growing; and have brows and lashes. Perhaps won't lose them. I'm here for ya; just so you know. I have 3rd chemo this Thurs., 15th Nov. Last time I experienced weak legs and my feet felt real peculiar; like neuropathy really. Thank God it backed off after 5 days. All the best, Jan

      over 4 years ago
    • believer's Avatar
      believer

      Yes, I can relate also. I had my husband shave my head after my second treatment. I purchased two wigs and many scarves prior to him doing this for us. I say 'us' because he is on this journey with me. My thought was after my hair was gone I would wear the wigs and scarves and be oh so fashionable. I felt sad when it happened and wore a wig or scarf the first couple of days. We had a day at work where everyone was showing support last month and I decided to go topless, no wig or scarf, and it was wonderful. I only wear scarves now when it's kind of cool outside, but otherwise I go topless and love it!!! Try it. I had my 4th treatment on Nov. 2nd. I also had the weak legs, sore feet, and tingly finger tips. My doctor said was due to one of the chemo meds and reduced the percentage. I will have 2 more treatments after I have my surgery on Nov 26. It will be a double mastectomy and scaring me to death.

      over 4 years ago
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    rykardk shared an experience

    Loss (hair ): Thought I was prepared for it, but when that first clump came out in my hand after two weeks, I was shocked!!

    1 Comment
    • believer's Avatar
      believer

      I began losing my hair about the 2nd week after the first treatment. After my second treatment It came out even more. I stared at myself in the mirror and had a 'why me moment', but then began thinking what should I do to feel better..

      My family had already split up what they would do to support me in this journey. I look at the Cozi calendar they had created and noticed my niece had volunteered to assist me selecting earrings and scarves. So i called her up and we went to several stores where I purchased fashionable scarves, then went with husband and purchased a couple of very cute wigs, I wanted him to love them as much as I would since he would also have to look at me wearing them. We came hom and I sat down and had him shave the remaining hair.

      I wore the wigs for a couple of days, will do more as it gets colder, I wear the scarves some, but I mainly go without any covering. I thought that it was going to be hard for me to do, but found it very liberating. Here I am hear me roar kinda thing.

      I had to explain to my 5 years old grandson why I am bald and I must say the little guy took it all in quite well. His 3 years old sister hasn't seen me yet as she has been sick off and on since I had it shaved, but I am ready to explain it to her when she does see it.

      I've received so many positive comments from family, friends, co-workers, and even strangers have walked up to me in the supermarket and gave me compliments.

      over 4 years ago
  • rykardk's Avatar

    rykardk shared an experience

    Procedure or Surgery (PET-scan): Worst part was sitting for 1 1/2 hours waiting for the radioactive dye to circulate in blood, so the scan could read it.
    It was worth it because the results were no cancer anywhere else in body.