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    GregP_WN wrote on Sacaver's wall

    Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started with the help you need right now.

    https://www.whatnext.com/conditions/cancer/non-hodgkin-lymphoma-nhl

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  • Sacaver's Avatar

    Sacaver wrote on PLC's wall

    Do you have follicular lymphoma? Recently had surgery and diagnosed. Having a PET scan on tues and dr appt on wed.

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    Sacaver started following

    User: PLC

  • Schlegel's Avatar

    Schlegel wrote on Sacaver's wall

    Sacaver, you may be a bit overwhelmed right now, but things will get better. I was diagnosed with follicular lymphoma, stage 4, fourteen years ago, and I've lived a fairly full life since then including a mission trip to Armenia. If you have any questions, ask us.

    1 Comment
    • Sacaver's Avatar
      Sacaver

      Thank you for your encouraging words. I feel God’s peace as I begin my journey.

      9 days ago
  • Sacaver's Avatar

    Sacaver asked a questionNon-Hodgkin Lymphoma (NHL)

    Pet scan. What is it like? Going to Baylor cancer. Dr took out 2 growths below pancreas. What stage do drs start treatment?

    4 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      I've only had one PET scan and it was at the beginning of my journey - when we were still trying to figure out if I had cancer or not.

      The hardest part was getting insurance approval. It took a little bit of time for that to come through. Past that, all I remember is having to get there early, getting an IV of some kind of glucose and I think a sedative so that I would lie still. Seems like I had to stay in a dark room for a while as the glucose circulated through my body and then they wheeled me in for the scan. I don't remember anything about the scan itself.

      Obviously, I can't remember too much about mine, which tells you it was nothing to worry about :)

      Baylor is a good hospital, you'll be in good hands :) (Are you going to the one in Dallas off of Gaston?)

      10 days ago
    • Sacaver's Avatar
      Sacaver

      Yes the Baylor off Gaston....dr moshe Levy

      10 days ago
    • po18guy's Avatar
      po18guy

      This question is under follicular lymphoma. Have you been diagnosed with it, even in the past? Is it suspected that these lesions are a recurrence? As to treatment, many factors enter in. The stage does, although far less than in other cancers. The grade, certainly. The number and location of tumors is a factor. If transformation to aggressive DLBCL is suspected, that also enters in. However, an many cases, if one is asymptomatic and no other risk factors are present, it is placed under active surveillance, i.e. watch and wait.

      The decision of when to treat follicular is still controversial. Treating it too early is suspected of triggering a response which will accelerate its grade, or it transformation to aggressive lymphoma. It is a balancing act and can only go on a case by case basis, taking the above factors and many others into consideration.

      9 days ago
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