• salvesen's Avatar

    salvesen started following

    User: Emmers

  • salvesen's Avatar

    salvesen started following

    User: Izzie

  • salvesen's Avatar

    salvesen posted an update

    my 11 year old niece has been diagnossed with condo sarcoma. its a very rare aggresive cancer, that in a rare spot(not in her bones), in a rare age. The dr.s are going to do radiation but considering chemo because of the fact it usually comes back. her mother is thinking about reaching out to other hospitals to see if maybe one has more experience with this shes currently in loma lina childerns hospital (CA). any advice on where to call form more help

    1 Comment
    • FreeBird's Avatar
      FreeBird

      Hi salvesen. Welcome to Whatnext. Holy moly 11 years old. That's not right. Best wishes to you and your family. You might try posting your question under the Questions tab at the top of the page where more people may see it.

      Two excellent sources of information for cancer, as a starting point, are
      The American Cancer Society www.cancer.org (1-800-227-2345) and
      The National Cancer Institute www.cancer.gov (1-800-4-CANCER)

      over 4 years ago
  • salvesen's Avatar

    salvesen shared an experience

    Decision Point (doctors cant really decide on a plan of action)

  • salvesen's Avatar

    salvesen shared an experience

    Procedure or Surgery (Surgery): has a tumor removed off her spine

  • salvesen's Avatar

    salvesen shared an experience

    Oh No (Diagnosed)