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    Question: Lyphedema

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    SamanthaJB asked a questionBreast Cancer

    Lyphedema

    14 answers
    • Bug's Avatar
      Bug

      Goodness, I wish the medical folks would get on the same page. The lymphedema physical therapist that I saw said lymphedema is *not* life threatening. I also try to view the massage, etc., as part of my exercise regimen – something that needs to be done regularly. I also get annoyed sometimes about doing it but I keep telling myself that it’s better than having breast cancer. I lift light weights (three or five pounds) in my exercise class (currently twice per week). I have been told by the lymphedema PT, my oncologist and others that light weight lifting can be very beneficial. As a matter of fact, at my PT office they have classes specifically for this. Maybe it would be nice if you could find a class. Doing something about it with other people might make it a little more palatable…? BTW, my PT also recommended I watch my salt intake. Good luck, SamanthaJB.

      almost 4 years ago
    • Clyde's Avatar
      Clyde

      I'm going to add to what Bug as said. I'm a very active man and I credit this with a great deal of my lack of problem. Exercise is a great healer. The massage that is mentioned often, is a form of exercise. Your body has been changed so there are going to be reactions, but those should dissipate with use. Think of a broken bone. You have to start using your arm again to get it back to strength or you will spend the rest of your life with it in a sling.

      almost 4 years ago
    • smishik's Avatar
      smishik

      I was told by my Onc that I must use the sleeve at all times. If your arm swells it could turn into cellulosis and then it could make the fluids solidify and cause all kinds of problems. Very dangerous indeed to not wear your sleeve.

      about 3 years ago
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    SamanthaJB asked a questionBreast Cancer

    Who else had a lot of lymph nodes involved?

    5 answers
    • gwendolyn's Avatar
      gwendolyn

      My situation is somewhat similar to yours in that we are the same age and I was diagnosed with Stage 3 BC, six months after an all-clear mammogram, too. My primary tumor is 5+ cm and I had a 1+ cm tumor in one of my lymph nodes. My surgeon felt he could get clean margins with either a lumpectomy or a mastectomy, but I chose mastectomy because the amount of tissue removed in a lumpectomy would have been significant. What's different about you and me is that my other 11 nodes removed were clear.

      I know you were asking more directly about lymph node involvement than you were asking about lumpectomy for Stage 3 BC in women our age with a history of clear mammograms. My friend's mother was recently diagnosed and all 22 nodes removed were cancerous. It's probably not as unusual as you think. Hope this helps a bit.

      over 4 years ago
    • mcowett's Avatar
      mcowett

      I only had 10 removed and what was more worrysome for me was the lymphedema and not so much the cancer coming back. Take care of your arm, do those exercises they suggest, stretch that arm out. YOu do not want lymphedema. I got it and it is not fun.

      over 4 years ago
    • karen1956's Avatar
      karen1956

      My BS only took the first layer of lymph nodes out....12 total....8 were postive...from what my BS said, is that people have different amoutns of nodes in each layer....and some docs take all 2 layers...I had a bilat (one side prophy)...I was not a candidate for lumpectomy as I had 3 tumors in my breast...i sometimes worry that since lots of nodes were left, maybe there were more involved with cancer, but with chemo and radiation, I'm okay....What your doctor says make sense to me.....

      over 4 years ago
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    SamanthaJB shared an experience

    Side Effects (Other): After reading the drop down list of side effects I feel quite lucky! I did develop a frozen shoulder possibly due to a minor injury before and then aggravated by the surgery and being less active during chemo.I had 60 sessions of physical therapy. The strangest thing to me is that now, after all active treatments and after feeling strong and positive, I now feel anxious, overwhelmed and slightly depressed....even with meds.