• Sandie's Avatar
  • Sandie's Avatar

    Sandie asked a questionLung Cancer

    Numbness

    7 answers
    • Sandie's Avatar
      Sandie

      I ended up going to the emergency room night before last. My leg was so numb, I could barely walk on it without support. They did an MRI and found a mass on my L-2. I have had cancer on the L2 in the past and had radiation. I am scheduled for my routine 3 month PET scan on Tuesday. The doctor in the ER spoke to my oncology doctor and I have to call him first thing Monday Morning to find out what steps we are going to take. Thank you all for your input.....Its so nice knowing that there are people out there supporting and giving me advice when I need it.....God is Good.....

      8 months ago
    • 2943's Avatar
      2943

      This journey is crazy! Hang in there! Nice to know I am not the only one who has things popping up. Keep in touch.

      8 months ago
    • KB2013's Avatar
      KB2013

      Anybody order exam for blood clots (leg).

      7 months ago
  • Sandie's Avatar

    Sandie started following

    Question: Numbness

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    Sandie started following

    Question: out of breath

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    Sandie shared a photo

    Wall_13501747_10153617052556921_2073649226197912016_n

    Hi everyone....Its been so long since I have did an update on Whats Next.....So would love to share a few things I have been through since the last time I wrote. I was on Opdivo for well over a year. I had some complications with it, rash, sores in mouth, but the third one, at 15 months of treatments...they took me off because it was affecting my breathing....My saturated levels had dropped so much, and when my pulmonary doctor did tests, he got in touch with my cancer doctor right away....Right now I am on Alimta...which is a 10 minute chemo. I get vitamin B 12 shots every other visit..which is every three weeks...and xteva every other time also. I have had three flare ups with my cancer matastisizing.....first to my hips as you know...then to my sacram, and L 1 and 2. The third flare up was on my L 3, L4 and L5. For the past 7 months on the Alimta, there have been no new flare ups....No hot spots and no active cancer. Having stage 4 lung cancer has been a trip of ups and downs, but its made me a much stronger person...It may sound strange. My tumor on my lung was noticed after a car accident on December 15, 2012....I was officially diagnosed with Non Small Cell Lung cancer on August 1, 2013. I am having a problem with my eyes now, watering and being red and swollen. Have been put on drops, one with prednasone today, and hoping this helps....Had driving with my eyes like this...especially at night. I feel great other then that...I have alot of back pain, I believe because of all the radiation, but I am still walking.....and with a very small amount of pain meds, it helps the pain significantly.....I guess this is about it for me for now....and again, so sorry its taken me so long to catch up.....Sending prayers and love to all.......I see alot of familiar names here still......and so happy that your all still reporting into What Next....Bless you all......and take care.....

    4 Comments
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      Glad to hear no more hot spots. Hope you get the eye thing figured out soon.

      about 1 year ago
    • GregP_WN's Avatar
      GregP_WN

      Good news, thanks for the ipdate.

      about 1 year ago
    • geekling's Avatar
      geekling

      Very nice of you to post an update.

      It seems you have been very successfully busy at staying alive. Congratulations.
      I kinda hope that, until the steroids kick in, you dont drive especially at night. Somewhere, right behind cancer and strokes, a top killer is car accidents.
      I have been struck by 6 other cars in 5 years. Besides physical pain, driving insurance is through the roof.
      Be safe. Dont take chances. You have been through too much to throw away your life foolishly.
      Apologies for the lecture but it just poured out of me.
      Be kind to yourself and stay strong in beating back the attacker.

      about 1 year ago
  • Sandie's Avatar

    Sandie asked a questionLung Cancer

    Opdivo

    11 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      Good luck, Sandie! I can't wait to hear how you do on Opdivo. I hope it will work to shrink away any tumors you might have. Stay in touch, please!!!

      almost 3 years ago
    • ikedo's Avatar
      ikedo

      My husband had 1/3 of right lung removed for tumor. Stage 1 had lots complications but no rad or chem o surgeon said it wall removed last week his cat pet scan show 2 tumors now in left lung will need biop surgically done to test am wondering now should he had gotten some sort of treatment after first surgery done last year at this time to make sure of it not spreading.any minute cells possibly left. We are having and have been having a confusing care of both of us with our cancers from the same docs thanks

      almost 3 years ago
    • ikedo's Avatar
      ikedo

      Opps forgot also including medications treatments afterwards

      almost 3 years ago