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    Sandyantoni407 shared an experience

    Drug or Chemo Therapy: It’s been about 3 months since my husband started his new therapy of Erbitux and CPT 11. I believe he’s had 6 treatments. This week he had a follow up PET scan and the results are positive. “There has been significant improvement of the metastatic burden... lung and liver metastases have significantly decreased in size.”
    Starting a new therapy is always scary, but we are very fortunate that he is tolerating it well and side effects are manageable so far.
    I’m very grateful.

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    Sandyantoni407 posted an update

    Been a while since I’ve posted, last time was in November prior to my Husband undergoing Pleurodesis. Regarding the procedure I would just like to say that everything worked out very well. He has been fluid free, he has more energy, breathing better And most importantly the discomfort has subsided.
    He Is also on a new chemo treatment since the Avastin and 5FU We’re no longer providing positive results.
    He has just completed his fourth treatment of Erbitux and CPT 11.
    I am happy to report that his tumor markers numbers are the lowest they have ever been in the past 2 1/2 years!
    The side effects from this treatment are manageable.
    Fatigue, diarrhea, mouth sores...
    He has been playing golf every week.
    Next PET scan is scheduled for the second or third week in June. I’m crossing my fingers for a good results.

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    Sandyantoni407 asked a questionColorectal (Colon) Cancer

    CPT 11 & Cetuximab (Erbitux)

    4 answers
    • lo15's Avatar

      Husband is on the same and they are not working enough either. Tumors showing slight growth and CEA is up. So they are sending him to a research Dr at the hospital next week. Vectibix has been mentioned as the next drug up from his Dr. Waiting until next week to see what they decide. All we can do is move forward. Best Wishes

      11 months ago
    • Sandyantoni407's Avatar

      Vectibex is also a choice for us.
      I will keep you posted on our decision and how we’re making out. Thank you for sharing- nice to know I’m not alone.

      11 months ago
    • krisanderson's Avatar

      I am currently taking irenotecan and erbitux and will have my 6th round next week. My experience overall has been OK. It has definitely done it's job as my CEA dropped to normal range after just 2 treatments and my last scan showed significant shrinkage of tumors in my liver and a couple of very small ones no longer visible.

      I did get a rash from the Erbitux after one round but it has been manageable and much better than I expected (I was very nervous about this part). There are quite a few meds to manage it and I use just a topical.

      The irenotecan has been harder on me. The digestive challenges are not always fun but again there are ways to manage. I take immodium as soon as I get hit with diarrhea and that helps immensely! My white counts drop pretty significantly on this so I have been doing treatment every 3 weeks instead of every two and get g-shots to help. Part of the decision to do it every 3 weeks was also that I was having positive reaction to in it terms of drops in my CEA. I did lose all my hair from this as well - that was a bit shocking as I was expecting thinning but I'm actually enjoying wearing a beanie all winter and not dealing with hair (although I have an awesome wig I use for certain activities or events).

      Since I am now in the normal CEA range and last scans were very positive the doctors are giving me a break after I complete the 6th round. They said research shows that this combination has shown to be effective in an on/off pattern so I will monitor my CEA and scan at 3 months and then we will determine whether to go back on or keep monitoring. I am looking forward to at least a short break.

      Please let me know if I can answer any other specific questions and I hope you find this combination to be effective for you.

      11 months ago