• CharMyrdal's Avatar

    CharMyrdal wrote on Sapech's wall

    Hi,
    I just noticed we have the same diagnosis and are the same age! How long after your frontline chemo ended did you recur?

  • macfightsback's Avatar

    macfightsback wrote on Sapech's wall

    Welcome Sapech,
    I was diagnosed stage 3 C too. It was in July 2015. I am receiving chemo for my 2nd reoccurrence. It is a little discouraging and definitely scary. 2 pulmonary nodules popped up in my left lung and one on my left diaphragm. We have been unable to perform a CT guided needle biopsy due to their location. They lit up on a PET scan and doubled in size in 4 months. I have never smoked (my grandaddy died of lung cancer when I was about 10 years old and since he smoked I never wanted to smoke). All of this was caught on routine scans. I remain asymptomatic. You are in my thoughts and prayers. Feel free to ask any questions. We are here for you.

  • GregPWN's Avatar

    GregPWN wrote on Sapech's wall

    Welcome to WhatNext! We are happy you found us for support, but sorry for your reason for needing to be here. This is a great community of patients, survivors, caregivers, and their families. Lots of them are ready to help with any questions or issues you might have.

    If you have an issue right now you need help with, click on the questions link at the top of any page then ask a question about whatever you need help with. As soon as someone with experience with that issue sees it you will get some answers.

    If you need help with anything on the site please let me know, we are here to help you through this.

    All of us on the WhatNext Team wish you the best!

    GPierce
    WhatNext Community Mgr.
    3X Survivor

  • kalindria's Avatar

    kalindria wrote on Sapech's wall

    Hello, Sapech, and welcome! I'm so very sorry to hear of your diagnosis but you've found a great place to ask questions, get information, and share experiences. We're close in age and were both diagnosed some time ago. I was stage IV at my diagnosis and I'm still here more than five years later. - it IS possible.

    A few months ago, I recorded a series of videos for WhatNext about my cancer journey. You may find them helpful. I've included a link at the end of this message should you wish to check them out.

    WhatNext.com is a great place for everyone, from the newly diagnosed to those of us who've been living with cancer for some time - friends and loved ones too! While you're here at WhatNext.com, check out the questions and experiences of other folks here. You can find people who've had the same cancer, surgeries, chemotherapy and experiences should you wish. It's often reassuring to know others have been through what you're facing and thrived. I also recommend the PINBOARD - there are often humorous or uplifting posts that can make your day. Definitely worth checking out.

    https://www.whatnext.com/video_pages/ovarian_cancer_videos_kalindria

    In the meantime, I'm here if you have any questions or want to chat.

  • Lynne-I-Am's Avatar

    Lynne-I-Am wrote on Sapech's wall

    Hi there Sapech, thank you so much for sharing your experiences so far fighting this disease. I am sorry you are having a recurrence, this is the reality for too many ovarian cancer survivors when diagnosed in the later stages of this disease. Today, more than ever before though, there are more weapons in the arsenal to treat these recurrences. From Wharton’s I read, the treatment your on right now is not too bad as far as side effects . I wish you success and good results from your treatments. You are correct when you state that ovarian cancer is treated as a chronic disease and today many gynecologist oncologists keep ovarian cancer survivors on some kind of maintenance therapy right after frontline chemo, trying to prevent or st least delay a recurrence.

    I came to WhatNext in 2013 after being diagnosed with stage IIIC ovarian cancer. Like you, I had both IV and IVP chemo. I found a wonderful site full of survivors who are here to help you and each other. The site keeps improving and now in addition to general information and resources they have incorporated blogs written by fellow survivors and videos that feature survivors telling their stories. One video in particular is by my friend kalindria. She talks about her experience with recurrence and ovarian cancer . I think you may find it helpful. Another ovarian cancer survivor going through a recurrence is macfightsback. You can reach out to both of these ladies using the people tab and typing in their names under ovarian cancer survivors.

    I encourage you to keep reaching out, ask some questions , help answer some of the other survivor’s questions. It has been my experience that connecting with other survivors is a very positive experience. You can connect with any of the survivors on WhatNext on their individual walls. I wish you better days ahead and I am here anytime to talk.

  • Sapech's Avatar

    Sapech shared an experience

    Drug or Chemo Therapy (Chemotherapy): Avastin and Doxil.