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    SarahPants asked a questionOvarian and Fallopian Tube Cancer

    Borderline (LMP) tumors, IVF, and Insurance

    4 answers
    • nancyjac's Avatar
      nancyjac

      I'm not sure what you mean by borderline tumors. If they were removed then there should be a pathology report that identifies whether they were malignant or not.

      about 3 years ago
    • SarahPants' Avatar
      SarahPants

      Thanks CarolIN! I did hear back from my Dr. and he did say that it was cancer and that he would sign off for the IVF and the insurance. It looks like the insurance will pay for cancer patients consultation and diagnostic testing, but that's it :( Boohoo. At least they recommended some funds that sponsor IVF for cancer patients. I'll try them out.
      Nancyjac- yes- "borderline" or LMP serous epithelial tumors are my pathology. They are a specific kind of rare ovarian cancer more commonly found in younger women. They're mostly chemo resistant and usually slow growing- partly malignant partly benign cells. I was confused when I first heard as well. My overall prognosis is good (knock on wood), as long as I can remove my ovaries before it spreads anymore. Hence, the rush to save my eggs as soon as possible.
      Thank you both for replying! I'll let you know what happens. Maybe my husband and I will just have to pop out a kid (really fast) on our own- haha!

      about 3 years ago
    • Dreynolds' Avatar
      Dreynolds

      Thanks for this info. I had surgery in June for the same borderline tumors... It is very confusing. They are cancer and my insurance covered it. Vaginal hysterectomy with biopsies. Staged at II b/c.

      almost 3 years ago
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    SarahPants wrote on Barb's wall

    Barb! I miss you! Hope you're well. Hugs!

    2 Comments
    • Barb's Avatar
      Barb

      Hey, Sarah...I'm doing great. Had a few setbacks but I'm on track now. I hope all is well. I know you've had another surgery. How is it going? Let me know. Think of you often.
      Barb

      over 3 years ago
    • SarahPants' Avatar
      SarahPants

      Oh no! I'm sorry. Are you ok? I'm glad to hear that you're doing better now. Yes, I had my second surgery a few weeks ago. I'm still home mostly relaxing on the couch (the Dr. doesn't want me to drive or do much). I'm feeling pretty well, which is really fantastic. How is everything else going for you? Is your husband doing well. I think of you often as well :o) Hugs and love!

      over 3 years ago
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    SarahPants shared an experience

    Procedure or Surgery (Fertility sparing surgery): I just had my second surgery on Monday (April 2). They removed two tumors from my left ovary as well as new lesions in my uterus. I must have the most nimble and crafty surgeon, because he was able to spare some of my left ovary and didn't take the whole thing. This gives me a little bit more wiggle room to try to conceive a child or prepare for IVF with my own eggs. I feel incredibly fortunate that he's a master with fertility sparing surgery.

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    SarahPants wrote on Barb's wall

    Hi Barb!

    How are you? I've had trouble writing on your wall :( It keeps giving me the little "loading" lines and not posting. Hopefully it will work this time???
    Anyhooo- Just checking in to see how everything is going? That stuff with the PA sounds somewhat comically ridiculous and definitely Frustrating! That's crapy about the recurrence rate. EEp. I guess that all a person could do would be to stay positive. At least it gets better after a while- just hold out for the long stretch :o)

    The money aspect is hurting us too. Man... and insurance co.'s stink. At the moment I've been trying to research benefit coverage for IVF and egg freezing. It's way to complicated.

    Honestly, I've had a rough week. I'm crazy tired and just feeling crappy. I have to have surgery again in the coming weeks. So far they have me booked for April 2 because the Dr. only operates on Mondays and Tuesdays, he's going on vacation, and the OR is "booked solid." So apparently I'm "on call" for coming in if they have a cancelation or find extra space. I'm just tired of being stressed out and not having a plan or real schedule. Ok- there's my rant- haha.

    Anyway- sending my hugs your way. I'm sure that we could all use a couple thousand. :o)

    2 Comments
    • Barb's Avatar
      Barb

      Sarah..so glad to see this post as I was beginning to worry about you! I know that IVF is extremely expensive. Plus the cost of whatever insurance doesn't cover and copays.....ridiculous. It really sucks that you don't have a plan in place. I'm really surprised how cancer patients are handled by the health care professionals at times. I go for chemo on Monday when they will hospitalize me to infuse the meds very slowly as I had an allergic reaction to the Cisplatin. I will go in Monday morning if they have a bed available. I will be discharged Tuesday afternoon. Then I will continue the last three days of my treatment as an outpatient. That will bring me to the halfway mark of my chemo. I'm going to an acupuncturist to help me with the side effects that have hit me a day or two after finishing therapy. I'm curious to see how effective it is. I'm also making plans to make extreme changes in my diet (I am a major junk food junkie)...so this will be hard but interesting. Other than that, all is well. I don't feel or look sick (just that I'm bald, but with my hats no one seems to notice). I hope all goes well for you....keep me posted on your progress
      Love,
      Barb

      over 3 years ago
    • SarahPants' Avatar
      SarahPants

      Hi!

      Yes- the diet thing!! I know, I've not been the best about eating "right" either. Jonnie and I got an ice cream maker for the wedding, so now it's out favorite thing to design and eat new and interesting flavors (in-fact we're eating "breakfast ice cream" at the moment) Hahaaa! I've been looking into eating a more plant based diet (thinking about going vegan, though I love steak and would have to give up my ice cream- waa). Have you looked into the "Crazy, sexy, cancer" books? Apparently there's a whole franchise around them. The writer advocates juicing, vegan or vegetarianism, and other dietary doodas. So- now I'm thinking about getting a juicer (ha)(I believe they sell ones that can make ice cream-like healthy things- yippee). My Dr's don't think that dietary changes would really help- but it couldn't hurt, and I think more holistic approaches are just as viable. Let me know how it goes with the acupuncturist goes! I've always been curious about and the treatment. I've had friends swear by them for helping with TMJ issues, and my voice teacher has wanted me to see one for years to alleviate my allergy symptoms.

      Wow- you're chemo regiment sounds tedious! Big hugs to you! That's crapy about the Cisplatin and having to go into the hospital. Yuck. Hospital smell freaks me out ever since the first surgery, but I think I'm getting used to it (not sure if it's a good thing). It's good that you look good! Do you have a large hat collection :) I'm sure in winter (now that it's actually cold- ha) having them all the time is handy as well as stylish ;)
      Yay- halfway through!! That's excellent!! Are you going to do anything to celebrate?

      As far as the IVF thing- it's actually giving me a headache. Apparently in MA it's mandated to be covered by insurance Co.'s. However, my husband's company just got bought by another whose policy is based out of TN. Iww. So- at the moment, it looks like we're not covered. Yuck. I'm looking to see if, because our circumstance isn't the norm, it might be covered by some loop-hole. Fingers crossed. Also- apparently egg freezing is still a "trial" thing- wtf? I totally thought that it was another "normal" viable option. Blorg.

      Man- this one is long- haha! I have tons of free time now. I was supposed to go to NYC yesterday for the next three weeks to be in a show- but now that all of this stuff has gone down, I pulled out and have nothing do do here at home. Haha! I did hear about a "Chocolate brunch" at a fancy hotel down town. Maybe I'll take one of my girl friends and feast. Ha! (So long for the vegan trial).

      Ok. I've written a ton. Hugs and best wishes and love for the weekend and your hospital stay. Also- I figured out my computer problems (a setting issue) with this sight- yay!

      XXX
      Sarah

      over 3 years ago