• kalindria's Avatar

    kalindria wrote on SDCindy's wall

    Hey there! Just wanted to reach out and welcome you to WhatNext. Glad you've joined. Like Greg_WN below, I can probably help with navigation, questions, etc. Heck, I've already told you most of what I know about cancer...

    In case you hadn't figured it out, it's your big sister. Hope you're feeling OK today.

  • GregP_WN's Avatar

    GregP_WN wrote on SDCindy's wall

    Welcome to WhatNext, we are sorry for your need to find us, but happy that we can help you. There are a lot of great people here that have already been through what you are facing and are willing to help you get through it too. If you have questions about anything just post them on the Questions Page. Others will chime in with their personal experiences.

    If you need help navigating the site, please contact me, we are happy to assist. We also have active social pages, you may wish to search those out also. Take some time and poke around the site, there is a world of information here that you will find. The more you dig, the more you will find.

    We have an opportunity for you to make your voice heard with our partner Rare Patient Voice (www.rarepatientvoice.com) to be invited to qualify for surveys and phone interviews for projects that apply to you and if you do qualify you will be compensated on a $100 per hour basis. There are pharma companies that would like to hear about your experiences with certain drugs or side effects. Your information might help develop the next generation of drugs.

    Rare Patient Voice will send you an email inviting you to join their panel. If you say no or don't respond to them at all you will not be added to their panel.

    If you say yes be assured your information is only shared with Rare Patient Voice and is treated with the highest degree of confidentiality. If at any time you want to opt-out of receiving invitations to projects you can do so immediately.

    Thank you for joining us, if you have questions please contact us.
    Greg_P
    5X Survivor

  • SDCindy's Avatar

    SDCindy asked a questionPancreatic Cancer

    Acinar cell pancreatic cancer

    • kalindria's Avatar
      kalindria

      I have a different type of cancer but the pandemic seems to have slowed down posting on this site a bit. I'd keep checking back (altho you'll be notified of any responses) and keep asking questions.

      about 1 month ago
    • Russ' Avatar
      Russ

      I don't have that type of cancer cell, but I did have stage IV pancreatic cancer. I had surgery on November 3, 2000. I beat this thing for 19 years and now it has returned in the form of stomach cancer. I will beat this thing just like I did before. My best to all of you...Russ

      23 days ago
  • SDCindy's Avatar

    SDCindy started following

  • SDCindy's Avatar

    SDCindy shared an experience

    Drug or Chemo Therapy (Chemotherapy): I started with Gemzar and abraxane and. About 17 months. Took a break and did 5Fu and iriatacin for 2 months (it didn’t work and the side effects were horrible. Now I’m on carboplatin (3 months now, every week)It seems to be slowing down the monster, but it’s still growing and spreading. The side effects are vomiting, nausea fatigue.

  • SDCindy's Avatar

    SDCindy shared an experience

    Oh No (Just Diagnosed): June 2018. I’ll never forget it. My doctor said inoperable and I have two years to live. Oh no!
    I have made many changes in my life to improve the quality of living around here. I’m here at two tears now and still going “strong”.