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    Suzy-q wrote on Sdiaz303's wall

    Good Morning... I Hope this gives you some perspective.
    I was diagnosed Monday, Oct. 20, 2009. When I put it in writing it seems so long that saying aloud, Anaplastic Astrocytoma Grade 3. Their was nothing to cause alarm anytime prior. I had just come home from work, went into our home office to open the mail. the room started to spin, called my hubby. told him something was wrong. I must have blacked out from there, My next memory was him coming in the door hollering for me. I had gone into a different room, don't know how I got there. That was an hour after I called him.My only thought was it was a good thing I only worked 5 minutes from home. That seizure, if I had still been on the road, might have killed me or someone else. That was a Friday, the 16th. On Mon. (the 19th).following the unusual "how was your weekend" type of conversation, my manager told me to go call my doctor, they got me in that afternoon and following her instructions after a quick exam, was sent to the hospital. After a night of observation because my blood pressure had them fearing I would have a stroke, and every test in the alphabet soup, my Dr. came in Tues. a.m to tell me they had spotted a mass on my brain, which had caused the seizure that she was certain I'd had, based on what I described to her.I was transferred to different hospital, where one of the best neurosurgeons in the country practices in San Antonio. He came in to speak with my husband and I that evening, gave us all the details of what he would be doing, with all the time we needed to ask questions, and get answers in laymen terms, no less :-) I had the surgery on Wed went home on Sunday, only because I would not be home alone for the next few days, Our anniversary was coming up on Tues, and my husband had already requested the week for vacation time, earlier in the year. ow handy that it worked out, but no get away, like we try to do.
    Started Chemo and Radiation in December, only because they wanted to wait for the 6 week post--op time to pass.
    I have had the stressful time of monthly MRIs, then the high of "lets go 3 months until the next one", followed by better highs of " 6 months" then 9 Months, and finally a year" that was a celebration dinner!!! :-) I did have a set back once,near the 5 year point. Neurosurgeon saw a new shadow...but we all decided to wait, turned out to be scar tissue... went back to once a year, for 3 years, now I am at 18 months til an MRI, but my oncologist wants to do lab work at 12 months. Sorry to give you so much my journey, but I remember all the anxiety the beginning of this path holds.And hearing or reading that someone has made it beyond the "AVERAGE TIME" helped me gain a better picture of what I can do.
    You don't know how strong you are till you have no choice. I wish you well on this journey, it's not one any of wants to take, but if you have faith in your care team it makes the road smoother. Best advice, Write things down as they come to you, whether it's a question, an observation in your reactions to something, i.e. drug, light, hearing, speech, or speech pattern, vision.. Depending on the location of your tumor and your radiation strength you could have anything effected.

    2 Comments
    • Sdiaz303's Avatar
      Sdiaz303

      So... you beat it with the standard of care??

      6 months ago
    • Suzy-q's Avatar
      Suzy-q

      I will never think of it beating it, but it's dormant. I accepted long ago that it can rear it's ugly self and be active again. I rejoice every morning that I wake up, but some days are better than others. I have balance issues, nad by the end of the day, finding the right word to describe something eludes me. My tumor was on the right front parietal lobe, mainly effecting speech and cognitive thinking. Following a conversation can be trying as well. and yes just the standard protocol, although my chemo was pretty aggressive.

      6 months ago
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    Other Care (CAM (Complementary and Alternative Medicine)): Starting to take fda aproved drugs to fight cancer. Using thc, ozone therapy oxygen therapy any and all available

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    Radiation (External radiation )

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    Drug or Chemo Therapy (Chemotherapy)

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    Procedure or Surgery (Surgery)

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    Sdiaz303 shared an experience

    Oh No (Just Diagnosed)