• searcher's Avatar

    searcher posted an update

    Doctors. This is all new to me. I am just waiting for them to tell me what to do but some don't seem to follow through. Maybe it is just me. I took my annual PSA test and it was high. My GP sent me to a Urologist who treated me with antibiotics but that Urologist neglected to prescribe a PSA test. After the antibiotics I returned to the doctor with no PSA results. Then I had to schedule another appointment. My PSA had gone down but it was too high so I asked for a biopsy. I did not know it but the Urologist was supposed to get Cardio Clearance because I take blood thinners. I thought the biopsy was a shot or two not 12. Got pretty bloody. Getting the biopsy results, the doctor told me I had slow-growing cancer in one core but didn't give me a Gleason. The next few weeks I started reading everything I could and found out about the Gleason so I returned to the doctor to get copies of my tests. I was set to take a PSA every 90 days and my next one was in 5 days. As I read the biopsy it said I also had one core with acute prostatitus. The Urologist did not mention that nor did they treat it. I took my PSA test and at the next appointment, I was told it was and 8 and was probably from an infection. At that point I said "Yes. It says I have acute prostatitus on my biopsy and I want it treated." The Urologist gave me a prescription and I left. I was so emotional I was not paying attention. I thought it should have already been treated so the PSA would show info on cancer not infection. It seems I am behind playing catch-up. The Urologist didn't give me a Prescription for another PSA test to follow the anti-biotics I received and my next 90 day PSA Test will still be 45 days away when I finish. Other Urologists gave me two prescriptions when I had an infection. One for drugs and another for a PSA test. The antibiotic was the same one that did not work the last time because 3 weeks after 30 days of antibiotics the biopsy said the acute prostatitus was still there. I am learning that I have to be my own doctor and follow behind on everything. Is this common to Urology? Anyone else had this problem?

  • searcher's Avatar

    searcher wrote on mfstans's wall

    I too have a Gleason 6 in a single core (3+3). My PSA was 4.47 and 3 months later it was an 8. I am doing active surveillance. YouTube has a ton of videos on Prostate Cancer. You may want to check some out.

  • searcher's Avatar

    searcher started following

    User: mfstans

  • searcher's Avatar

    searcher wrote on tieto2011's wall

    I am in a similar situation, newly diagnosed, and trying to figure out what to do.

  • searcher's Avatar

    searcher wrote on Destiny's wall

    I was diagnose on 1/27/12 and I am trying to figure out what to do too. My Uncle had radiation 15 years ago and it worked but he had quality of life issues with incontinence and still does. Even so, he is alive and seems pretty happy for his age--about 80. He is very active although he has other health problems too.

    1 Comment
    • n2jhawks' Avatar
      n2jhawks

      I am 54 years old and was diagnosed in July with prostate cancer...gleason = 8.....I had the robotic surgery in Nov and am dealing with incontinence which is getting better. I just had blood tests that confirmed I had some cancer that escaped and will begin radiation in a month or so....my oncologists believes it is isolated and radiation will knock it out...my 2 cents is to get the surgery if you are young and dont worry about it spreading...

      almost 5 years ago
  • searcher's Avatar

    searcher posted an update

    When I first got my biopsy results from my doctor, she gave the results in conversation. She described my situation as slow growing cells, 5% in one core only that probably would not kill me for 10 years if I did nothing. I did not know what a Gleason was and she did not mention it. After reading what I needed to ask I went back and got a hard copy of my biopsy. The right lateral base core had a prostatic adenocarcinoma, Gleason Score 3+3, Score 6/10. Tumor involves 5% of one core out of twelve. Right lateral apex core has acute prostatitus. The other ten cores are ok. On 2/14/2011 I had a PSA of 3.6. On 9/14/2011 I had a PSA of 5.02 and was given a 30 day antibiotic treatment. PSA on 11/07/2011 went down to 4.47. If Biopsy on 1/27/2012 says I still have accute prostatitus in one core shouldn't I be taking antibiotics? Won't infection skew the PSA? Antibiotics took the score down .55 on 11/07 from 9/14 so won't infection untreated make the PSA I took today higher, cancer or not? My Urologist when talking about the biopsy neglected to tell me the Gleason Score or that I had an infection. Now I'm looking for a jump in the PSA of .75 for re-evaluating my choices but won't a change of .20 in the Cancer do that if I will have a .55 from infection? I am trying to understand this and my confidence level in my doctor is slipping. Am I being fair and objective?