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    User: Traplady12ga

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    User: emtough

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    User: WntrPkg8rl

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    Severt shared an experience

    Decision Point (Caprelsa is no longer effective so now need to decide if I can withstand another clinical trial or if it's just time to stop and leave it in God's hand. ): I have been on one type or another of chemo/ TKI for the past 7 years. I don't know if I have it in me to do another drug especially as a trial drug. With trials you have no control, your stuck with doing to dose they establish, you have to follow all the rules and you have no idea what side effects are going to hit you. Again it's about quality of life over quantity - I am not fighting for a cure for me (in time hopefully what I am doing may be a cure for someone else

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    Severt shared an experience

    Celebration (Cancer is shrinking): For 6 years on Caprelsa I have had some shrinking but overall have remained stable and for us with MTC - stable is an amazing word

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    Severt shared an experience

    Side Effects (Way too many to list but overall was able to manage with dose reductions & other medicines ): Compared to my 1st clinical trial drug this drug (Caprelsa) has been tolerable and has kept the cancer from growing for the past 6 years. 6 months ago it has stopped being as effective so it's time to decide again what to do