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    shadeau48 wrote on SMeridith's wall

    SMeridith, so sorry your Herceptin treatments have been suspended. I was fortunate to make it through them without problem, but your onco team will do what's best to get you back on the road to recovery. My hair also came in gray, but then it was gray before the process started. :) As I noted earlier, my final full chemo was 12/1/11, and my hair is now about 2". It's coming in unevenly though, growing faster around the back and sides than on top, so I've had a couple of trims to even it out. It's also coming in very thick and wavy, and everyone loves it. I'm seriously considering keeping it this short for the time being. As for energy level, it was a long time coming back, so you just have to be patient with yourself and understand your body has been traumatized unlike anything it's ever experienced before and needs time to heal. Look forward to feeling like your old self, but don't push, OK?

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    • SMeridith's Avatar
      SMeridith

      That helps me since you are about three months ahead of me. My hair was very thick before so right now it is beginning to thicken up some but is very fine. I had great coarse hair before so hopefully that will come.
      I do appreciate the comments. I am trying hard to keep the energy level from getting me down. I was always full steam ahead so this has been difficult. I do feel so lucky in the grand scheme of things so am trying to remain positive that I too will get to the end of this journey in a positive way.

      over 4 years ago
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    shadeau48 wrote on ColetteA's wall

    Hi Colette, just a quick note to let you know that there's a really good life waiting for you on the other side of treatment. I'm a few years older than you but was also stage 2, HER2 Positive. I had a mastectomy last July and six rounds of chemo followed by multiple more treatments of Herceptin. My last full chemo was 12/1/11, and I finished herceptin in mid-July. I have hair now, my stamina and strength are almost back to pre-diagnosis level, and I'm looking forward to a long and happy future. Please don't hesitate to contact me if you have questions. Linda

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    • SMeridith's Avatar
      SMeridith

      My dignosis was HER2 Positive, Stage 1A. I had the same treatments as you. However, I still have 6 Herceptin treatments to go as they have been suspended because they caused a problem with my heart...one of the possible side affects. I am on meds for the heart problem and until they get that resolved they won't give me any more Herceptin. It is really scary not having them finished but I have to do what they tell me to.
      I finished my last full chemo on March 8. My hair is slowly coming in and it is totally gray! How long did it take you to have enough hair to do something with? My hair always grew fast, but guess it is like watching water boil.
      I am finding my energy level is still very low. I exercise 30 minutes almost every day and am trying to eat right. Any other suggestions for the energy level?
      At this point all my blood work is perfect, so I am feeling optimistic even not taking the treatments. Just want to get it over with and get on with my life like you.
      So glad you have had good reports. How often do you see your doctor now?

      over 4 years ago
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    shadeau48 shared an experience

    Celebration (Birthday): I finished chemo on 12/1/11, and on 9/6/12, I celebrated my 64th birthday. Another birthday isn't an option for everyone, so I'm very grateful. I look forward to many more birthdays, dancing at my grandsons' weddings, and meeting my great-grandchildren.

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    shadeau48 shared an experience

    Side Effects (Chemo brain): Chemo brain has been the most frustrating lingering side effect because I was always sharp with a steel-trip mind. Now I feel like my mind is full of rust holes. I struggle to remember names, I search for the right word in conversations, I forget what I've been told just the day before by supervisors and colleagues. I'm hopeful that this too shall pass.

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    shadeau48 shared an experience

    Drug or Chemo Therapy (Chemotherapy): It was easy to do beause my surgeon put a port in during the mastectomy -- I'm terrified of needles and have bashful veins so staring IVs is always a nightmare for me. I managed to drag myself into work most days but my energy level was in the toilet, especially a few days after treatment. I was also the queen of uncommon but not rare side effects, so I lost all my finger and toe nails, I had a blistering rash across the backs of my hands, I developed unilateral edema (swelling in my left leg), ... On the other hand, I only was nauseous once, I lost a few pounds that I needed to lose, and my hair is coming back thick and strong.

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    shadeau48 shared an experience

    Procedure or Surgery (Mastectomy): I was shocked that there was no pain associated with the surgery. I woke up from anesthesia in my room and actually had to feel myself to ensure the surgery had occurred. Fortunately (although I didn't know it at the time), my surgeon put in a port during surgery. What a future blessing for me going through chemo!!