• ShellB's Avatar
  • ShellB's Avatar

    ShellB asked a questionColorectal (Colon) Cancer

    What can you do when you feel like the doctors are not doing everything needed for you to fight cancer?

    4 answers
    • ShellB's Avatar
      ShellB

      have been to different hospitals and i feel like they are keeping something from us. Its like no one wants to do anything and/or can't do anything.

      almost 3 years ago
    • lilymadeline's Avatar
      lilymadeline

      Hi ShellB,
      Ron gave you great advise, but if you have already gone to a few places I am guessing that the patient has a rare and aggressive cancer there may not be many hospitals that treat it....but sure as rain, somebody is going to have a trial somewhere, and there will be an oncologist in the US who is treating her type of cancer! This takes time and energy but you need to call around fast and start with the big hospitals. Get on the internet and on the phone! There are some incredible hospitals in the US but a few of the top ones are MD Anderson, Vanderbilt, Sloan Kettering, Stanford, UCLA, Cedars, City of Hope and of course Cancer Centers of America, personally I find their adds questionable but I have been told by nurses that they are actually top of the line. Please do not give up! Yes you may have to travel, it is what it is. Her life is precious and worth fighting for. My mother had a rare and aggressive cancer and I found a great oncologist to treat it after her HMO dumped her...saying that she was untreatable....well they were wrong! FYI- most major hospitals have some sort of housing available for out of town patients and you might need to talk to their social services to find out about housing. And please tell her oncologist that you feel this way! Take care and god bless!

      almost 3 years ago
    • DaveWaz's Avatar
      DaveWaz

      ShellB,

      Thank you for sharing your question. It reminded me of a post we published on the site a few months ago about how to be assertive with your doctor. Perhaps you will find it helpful.

      http://www.whatnext.com/blog/posts/10-questions-to-ask-your-doctor-and-10-ways-to-be-assertive

      Best of luck,
      David

      almost 3 years ago
  • ShellB's Avatar

    ShellB shared an experience

    Drug or Chemo Therapy (Chemotherapy): Chemo started again about a week after patient was told cancer is back. Not doing so well with chemo this time. Very nauseous and throat hurting severely.

  • ShellB's Avatar

    ShellB shared an experience

    Oh No (Cancer is back/Recurred ): patient had been telling doctors for months that she is still in pain in abdomen and feeling weak. They said they didn't know why, couldn't see anything..then went to a local er to get checked because of severe pain and that hospital told her she had another mass. Doctors never told patient that they were suspicious of another mass. Patient is going thru chemo again!!

    2 Comments
    • ibcarolek's Avatar
      ibcarolek

      I am so sorry. I wish doctors would listen more. I've read symptoms are as / more reliable than scans. We've found that to be the case and yet....We've also found the ER was more helpful than doctor visits since they run a full battery of tests. I hope she's victorious this second round!

      about 3 years ago
    • Christiana3's Avatar
      Christiana3

      I am so sorry too, I kept telling my onc I had pain in my lower intestines but because the tumor was in and not out the cat scan couldnt see it till it got bigger. Listening to your body is the best thing, we all know what is going on, I too wish that they would have listened, I hope that this time it goes away for good. Big Hug and sorry you have to go thru this again.

      about 3 years ago
  • ShellB's Avatar

    ShellB shared an experience

    Celebration (Finished treatment): finished chemo for a few months back in September

    1 Comment
    • Christiana3's Avatar
      Christiana3

      yay!!!! So happy for you. I hope you stay there!!!! Big Hug

      about 3 years ago
  • ShellB's Avatar

    ShellB shared an experience

    Drug or Chemo Therapy (Chemotherapy)