I was quickly referred to the D team, D for Dispair and Dysfunction. I have Dr, Garg Radiation, and he used an experimental radiation treatment- and he kept at it in proving that surgery spreads this. 2 summers ago, he finally got the tumor board to prohibit a surgical biopsy if it pops up again. I guess they'll do a needle biopsy. I have that fabulous Dr. Bernard Agbemadzo. So far, I'm cancer free from the original or a secondary cancer.
They wouldn't even let me fire my first oncologist, who was horrible--They were trying to run me out of the clinic. I somehow connected with others that had this online. They were run out and not even accepted at other clinics. Having facial disfiguerment that's combined with incurable--I know that tobacco caused cancers are horrible to look at, but they usually can be cured- and the clinic and doctor look good for treating these patients- and Everyone that sees them says- Don't smoke or chew. Do you know of Steve Schiff? He died in 18 months from a new SSC that was found on his congressional health exam. That was the only skin cancer they ever found on him. Mine was ignored for years and years. I begged Kirtland to take it off, UNMH to take it off, St. Jo, Pres, Lovelace-plastic surgeons, dermatologists-I just spent 5 months trying to get Pres to remove 2 bug bites from my arm they hurt-itched and kept changing size-lab doen't know what they were, anyway, they didn't want me looking ugly-dying- and me telling how it was ignored for over 20 years. I even sat naked at UNMH every semester for the dermatology students for 3 years. I got tired of being called names by what were supposed to be the best dermatologists in America. So Pres oncology tried to run me off.
A person can accept rare, a person can accept incurable, but a person cannot accept 3 appointments on the same day- same hour and at 3 different clinics-Pill Hill-Kaseman Oncology-and MD Anderson Radiology- we know that MD Anderson is attached to oncology, but there aren't any connecting doors, and a person must catch the elevator, and run a block- walk around or drive around buildings--or the other way around. Then showing up for appointments and they say the doctor-whoever isn't there.
The 3 of us have a good relationship. After what I've been through, I'm terrified of changing the relationship.
