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    sherryhalpert posted an update

    Just got new diagnoses that husband has ogliioastrocytoma instead of ogliodendroglioma which is a multi symptom diagnoses but still grade II. He had an excellent weekend. Great speech and cognitive ability. Starting on his third month of Temodar at a higher dose after 6 weeks of radiation with Temodar at a lower dose. MRIs are stable. Had one seizure but EEGs so no further seizure activity. Latest reports are all good but have a long road ahead.

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    • MizJill's Avatar
      MizJill

      Hi Sherry! So glad W is seeing some improvements! Yes, the Temodar dose does go up after the concurrent radio/chemo round. Merv's doubled and then tripled! (But part of that is because he's gained significant weight from the Dex, and the dose is calculated per cubic meter of body mass.) Well now, I am no Doc and I don't know one type of tumor from another, but I've always felt that the changes in W's condition were much swifter than I've seen described for an Ogliodendroglioma... so the discovery of the astrocytes might explain that. Well done on getting the 2nd look! xx

      over 7 years ago
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    sherryhalpert asked a questionBrain and Spinal Cord Tumors in Adults

    Deletions

    4 answers
    • creed0608's Avatar
      creed0608

      Hi Sherry, my husband's tumor was oligoastrocytoma grade 3...very rare from what I understand, but doesn't make us feel lucky does it? :) My husband's tumor had the deletions, and while I don't understand much about it, the doctor told us that they've found that it will respond better to chemo/radiation with the deletions. I don't think there is a clear cut answer here, his was a grade 2, so that is good news in itself. Sounds like your doctors have him on the best path available to him and now we must put our faith in God. Hope things are going well

      over 7 years ago
    • Fusionera's Avatar
      Fusionera

      Hi Sherry,

      I'm not familiar with records being sent out for a 2nd opinion on chromosome deletions/co-deletions. A chromosomal analysis was performed on my pathology from my 2011 craniotomy for 1p36 and 19q13 and PTEN. The analysis calculates a likely prognosis given the number of deletions. I found the following article, which explains it pretty well.

      http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2818514/

      Hope this helps a little bit.

      Johanna

      over 7 years ago
    • jbuchikos23's Avatar
      jbuchikos23

      My husband had the deletions on 1p & 19q in his tumor. For him, that means that the chemo (Temodar) is more likely to work on killing the cancer cells. He had anaplastic oligodendroglioma grade 3 with a resection in July.

      over 7 years ago
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