• ShirinePont's Avatar

    ShirinePont shared an experience

    Side Effects: Hair loss, nail decoloration, constipation, neausa, migrane headaches, insomnia... And I think, so far, I got lucky! Who knows what else will pop up. Just had chemo #4 and now I can add some bad swelling of hands and feet - barely got my rings off in time.

  • ShirinePont's Avatar

    ShirinePont shared an experience

    Drug or Chemo Therapy (Chemotherapy)

    1 Comment
    • justbreathe's Avatar
      justbreathe

      Hi, I noticed that you live about 45 min from where I live. (Franklin) What hospital are you going to for your treatments?
      I know this is very hard to go through. Cancer is evil. I was in the "cancer bubble" three years ago. There wasn't anything about it that was easy. I tried to keep my spirits up as much as possible. That can be difficult too.
      I am glad that you reached out to WhatNext. This is a good group of people
      that care. If you need someone to talk with let me know.

      almost 5 years ago
  • ShirinePont's Avatar

    ShirinePont shared an experience

    Procedure or Surgery (Breast Reconstruction (Flap)): It took a while to accept this new reality, and for several weeks I was quite angry about the irreversible change done to my body. In ways, it felt like grieving for my youth.

    Besides that I can feel one rib directly under my skin, which sometimes still freaks me out a bit, i.e. when I touch it or am touched -- and it can be uncomfortable to lie on.

    A strange side effect of this procedure is that every time I cough or sneeze, the muscle 'in my boob' jerks. Supposedly that will stop once the brain readjusts. I wonder if I can learn to jiggle my breast on command (or demand...:) ?

  • ShirinePont's Avatar

    ShirinePont shared an experience

    Procedure or Surgery (Mastectomy): Recovery from this operation felt like having been in a bad car accident. I've never been in so much pain in my life before! My left arm, shoulder and rib cage (I had FLAP reconstruction done at the same time) constantly felt like someone was poking a red hot iron into them. For the first time in my life, I requested ever stronger pain killers (after giving birth naturally to two kids, so I have had previous encounters with pain).

    I remember being in the hospital bed and being unable to reach the food they had delivered on a tray to the bedside; my left side was just one giant bandaged sore, and my right side trapped by IV lines. I felt so helpless, and completely lost and alone in sea of pain. That's when what I was going through really hit me.

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    ShirinePont shared an experience

    Procedure or Surgery (Implant chemotherapy port): I am incredibly happy to have the port! But it doesn't help that (I have small breasts) it sometimes looks as if there is a third nipple under my t-shirt! And I have to stop my 2.5 year old from bouncing around on me, which always makes me sad.

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    ShirinePont shared an experience

    Procedure or Surgery (Axillary Lymph Node Dissection): This was part of a 5 hour operation which included a partial mastectomy and breast reconstruction. Luckily, the lymph nodes were clear. But I never realized how long it would take to recover physically from the op - 3 months later, I still don't have full range of movement of my arm.