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    User: GregP_WN

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    Shirl posted an update

    I myself have had ovarian, basal cell, squamos cell and melanoma in situ. I am now dealing with morphea. Life is full of challenges.

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    Shirl shared an experience

    Other Care (Hospice): Hospice was useless. The last meeting with the oncologist was Friday; they came Saturday; the woman said you can reach me 24/7. She ordered a wheelchair (even though we had one), oxygen and a lift lounge chair. When they arrived, the oxygen was not working, the chair smelled disgusting and the wheelchair was too small. So I called the women, whom noone seemed to know anywhere. A nurse came on Monday reeking of cigarettes. He began bleeding on Friday so I called for her; she was not reachable, in a meeting. When she finally came hours later, she was still reeking. She did nothing, said an aide would come in the morning. The aide knew nothing, said the bleeding was just normal juices. He died 10 hours later. On Monday the nurse came back to see him. But I felt privileged to have taken care of him myself,. Between my son, the doc, andm y daughter, the nurse, I had all the info I needed.

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      FreeBird

      I am sorry that Hospice didn't work well for you. Looks like poor management where you're located.

      about 5 years ago
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    Shirl shared an experience

    Decision Point (the oncologist said no more chemo): That was a sad day: the first time I saw his tears. We sat on the bed holding onto each other and realizing that we had very iittle time left and this was for real.

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    Celebration (Birthday): We celebrated his last birthday at a restaurant with a mob of family and friends; he was amazing; I kept smiling though my heart was breaking!

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    Shirl shared an experience

    Side Effects (Fatigue (tiredness)): He felt fatigue after the first session, but after that he was fine. Until the end of the line when he wanted to continue and the oncologist (and my son, an MD) concurred there would be no poiint.