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    User: MAH103109

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    ShirleyJZ asked a questionLeukemia

    Maintenance chemo therapy

    6 answers
    • ShirleyJZ's Avatar
      ShirleyJZ

      To Outi, what are you taking now? My doctor is researching for something else that will work? Thanks.

      almost 3 years ago
    • Outi's Avatar
      Outi

      Working on qualifying for clinical trial. Lots of work finding what I need!

      almost 3 years ago
    • Outi's Avatar
      Outi

      On clinical trial now! Hopeful!

      almost 3 years ago
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    ShirleyJZ shared an experience

    Side Effects (Bone thinning (osteoporosis)): have chemo brain everyday and hard to remember things. 50% bone loss after 29 months chemo. still on maintenance chemo and still waiting for a bone marrow donor.

    2 Comments
    • tileace24's Avatar
      tileace24

      When you were first diagnosed did you go though chemo and why do you need a transplant? I didn't realize it was so hard to get a donor.

      over 2 years ago
    • WVgirl2424's Avatar
      WVgirl2424

      ShirleyJZ, how are you doing? Tileace24, I like ShirleyJZ have acute Myloid Leukemia, it destroys your blood cells requiring a transplant from a donor . First they kill all your cells then infuse donor cells in hopes that the donor cells take over. My donor cells worked for almost 2 years then my body started fighting them off. Now I have side effect called GVHD, treatment is monthly and permanent until my treatments stop working. Then there is no cure. Getting a donor is very dfficult. There are many out there in need so if possible do a donor drive in your area. Go to local hospitals and try to get them to do drive. Thank you. ShirleyJZ, I don't see you on here, I pray you received donor cells and are doing great my friend.

      10 months ago
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