• kalindria's Avatar

    kalindria wrote on Shockednawed's wall

    Hi there and welcome! I apologize for the lateness of my welcome but I just had my knee replaced and have been recuperating while snowed in here in Washington state. Crazy weather!

    Very sorry to hear of your diagnosis. In the early days, it's often overwhelming and confusing. Please take time to calm and focus yourself. It will help going forward.

    While you're here at WhatNext.com, check out the questions and experiences of other folks here. You can find people who've had the same cancer, surgeries, chemotherapy and experiences should you wish. It's often reassuring to know others have been through what you're facing and thrived. I also recommend the PINBOARD - there are often humorous or uplifting posts that can make your day. Definitely worth checking out.

    In the meantime, I'm here if you have any questions or want to chat.

    All the best!

  • macfightsback's Avatar

    macfightsback wrote on Shockednawed's wall

    Welcome Shockednawed,
    You are the third lady I have heard about who is diagnosed with Primary Peritoneal Carcinoma in the last month. The information they shared was that Primary Peritoneal Cancer is very rare and is treated very similarly as Ovarian Cancer. Ovarian Cancer is usually treated with surgury to remove all cancerous tissue detectable (which you can live without) often called debulking. Then usually followed by chemotherapy. Radiation is not usually used to treat Ovarian Cancer in the US although I have heard it is used as treatment in other countries. My Gynecological Oncology Surgeon is treating the first lady I met with Primary Peritoneal Cancer. I am curious, what speciality is your Surgeon/Oncologist? Radiation treatment is unusual. I have never had radiation treatment so I can not help with that aspect. Cancer is always a shock. It was for me too! It took me months before I could focus and make a decision about simple challenges. I am 61 years old, diagnosed stage 3C Ovarian Cancer in 2015. I know of at least 2 ladies on this site with your diagnosis. I hope they can help too! Feel free to ask any questions. We are here for you.

  • purfekt10's Avatar

    purfekt10 wrote on Shockednawed's wall

    My last chemo was in August for primary peritoneal carcinoma and I am in remission. I was also at stage 3. I had 4 rounds of chemo, then surgery, which was followed by 4 more rounds of chemo. I would suggest doing as much research as possible which will give you information about this cancer and its treatments.

  • GregP_WN's Avatar

    GregP_WN wrote on Shockednawed's wall

    Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started with the help you need right now.

    https://www.whatnext.com/conditions/cancer/ovarian-and-fallopian-tube-cancer

    There are also subtypes listed on this page to narrow down the type of cancer to match your dx. Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the database to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site.

    Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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  • Lynne-I-Am's Avatar

    Lynne-I-Am wrote on Shockednawed's wall

    Hi and welcome to WhatNext. I know you are scared, I was too. Getting diagnosed with any type of cancer is scary. Things move so quickly once you are diagnosed but it is important that you have a gyn/onc for your medical care. A second opinion is a good idea too if possible.

    My journey began in 2013 when I was diagnosed with stage IIIC ovarian cancer . I had been misdiagnosed for seven months. I received two rounds of chemo through a chest port, had debulking surgery, followed by four more rounds of chemo both IV and IP. Treatments vary with the doctor. Some have radiation treatments also, I did not. HIPEC surgery is more popular today than it was in 2013, and some doctors choose to have their patients on some kind of maintenance therapy for awhile, once frontline chemo stops.

    Relating to your question about chemo and chest ports, for many, a chest port is the better way to have chemo administered. Chemo is very harsh on the veins. A chest port is implanted into the left or right chest wall. Mine was inserted in the radiology department under twilight sleep. My neck was sore for a couple of days Although everyone is different, I have had no difficulty with my chest port. Before a chemo treatment I would put some Lidocaine ointment on the port and this would deaden the stick when the needle was inserted. My chest is sensitive but there are many ladies who do feel the need for ointment. Many clinics have a spray that can also be used.

    Please look the site over. WhatNext has interesting and helpful blogs and videos and our pin board is very active. All of us on WhatNext are here to help support each other. Wishing you better days ahead and here to talk anytime.

  • Shockednawed's Avatar

    Shockednawed wrote on maralyn's wall

    Kust diagnosed with ovarian cancer has spread and am very weak. Gyno oncology surgeon suggested HIPEC after trying chemo. I'm scared of course. Can anyone share their journey from beginning?