Thanks, Shoeless, for the great advice! I agree. As a matter of fact I have an appointment next week at Cleveland Clinic. I am in Pittsburgh and it is difficult for a Steelers fan to go to Cleveland, but they have better medical care :)
I have been there a lot recently. They gave me a new aortic valve in November. The University of Penn and the Clinic are just about equally rated for my conditions except for Pulmonary where Cleveland Clinic is rated higher.
I hope to know more after the Clinic gets continues the diagnosis. I'll update as I learn more.
Have a nice day!