• shotgun's Avatar
  • shotgun's Avatar

    shotgun asked a questionColorectal (Colon) Cancer

    looking for those who have had a total pelvic exenteration.Als,what are the best colostomy ,urostomy bags?

    • gonewest's Avatar
      gonewest

      https://www.inspire.com/groups/bladder-cancer-advocacy-network/

      Hi. This site is extremely helpful insofar as appliances for urinary diversions are quite common. They have a tipsheet that's amazing and it lists manufacturers and includes weblinks for free samples so you can see what suits you best.

      I don't have any recommendations for choosing colostomy supplies, but several people on BCAN have both. Best.

      over 5 years ago
    • Bfhbonds' Avatar
      Bfhbonds

      I have used both Hollister and Coloplast. I am currently using Coloplast but I like both of them. I use a pouch and an adhesive ring to seal the opening better.

      over 5 years ago
  • shotgun's Avatar
  • shotgun's Avatar

    shotgun started following

    Question: Radiation

  • shotgun's Avatar

    shotgun asked a questionColorectal (Colon) Cancer

    rectal pain,help

    5 answers
    • GolfGirl's Avatar
      GolfGirl

      I had excruciating rectal pain during & after radiation. Don't get me started. Unfortunately, the radiation & chemo weren't enough to spare me from a permanent colostomy & removal of my rectum. I was in so much pain, I welcomed the surgery. Lidocaine & Dilaudid helped tremendously. I pray you get relief!

      over 5 years ago
    • NanaL's Avatar
      NanaL

      Your Doctor must be notified if he or she doesn't already know about your pain. Something can be done to help and your suffering shouldn't continue. I pray you find relief soon. I also had rectal cancer and have a permanent colostomy. I'm stage IV also as it spread to my lungs. If surgery is needed then I pray all goes smoothly. Keep us posted.

      over 5 years ago
    • shotgun's Avatar
      shotgun

      Thank you all.I talked to my oncologist today and he checked me,changed my pain meds to stronger meds.He is trying to talk to a surgeon now to get colonoscopydone asap.The fentanyl patch and oxycodone has already helped with the pain.Hopefully will get the colonoscopy done soon.Then a PET scan.Continuing with my chemo.God bless

      over 5 years ago
  • shotgun's Avatar

    shotgun started following

    Question: rectal pain,help