• Shyamalmunshi's Avatar

    Shyamalmunshi asked a questionHead & Neck/Throat Cancer

    How to change my mail add ?

    • GregP_WN's Avatar
      GregP_WN

      email your new address to greg @ whatnext . com (don't put the spaces in the address) I will change it for you.

      about 7 years ago
  • Shyamalmunshi's Avatar

    Shyamalmunshi started following

  • Shyamalmunshi's Avatar

    Shyamalmunshi asked a questionHead & Neck/Throat Cancer

    How to avoid mucus plug forminng inside the trache ?

    8 answers
    • Ziggi's Avatar
      Ziggi

      I use the long cotton swabs to get the mucus to gather to a place where I can get to it and pull it out. I also have Hemostates I use to be able to grab at the stubborn strands and pull them out. I NEVER go deep, because I found that if I can grab at just a little strand the rest will follow. The Hemos are nice to be able to get in there qnd grab. After I clean them and give them a spritz of peroxide and allow to dry so they are clean for next time. I do a lot of coughing with this process which helps to loosen anything that may be pretty deep and I have coughed up some pretty nice size plugs, but happy they have come out. I keep 4x4 gauze pads handy for cleaning the area because as you know some of that stuff can be quite gooey. A friend put it perfectly once by saying it is like the stuff they use to attach cards in junk mail! I often need a tiny spritz of peroxide with a little water to be able to clean the outer area of the gathered gunk. (you can get peroxide in a spray bottle now) I also sleep with a humidifier on in my bedroom, and found some cool sponge type ones on Amazon that you moisten and just put over your vents that I have on 2 other areas in the house.
      I sometimes have to clean my stoma 3 or 4 times a day but the mucus is always moist or gooey. I have also made up a small kit of what I need that I carry with me when I go out. I just hope some of this goo goes away come spring!
      I hope this helped!
      Kim~

      about 7 years ago
    • safirentx's Avatar
      safirentx

      I am a Laryngectomy of 1 year now (surgery to remove cancer was Feb 4th of last year). I agree with all of the suggestions and have a couple of extra things to add that I hope help.

      I 100% agree about the humidifier suggestion and most importantly keeping your stoma moist. You don't want your plugs to be so hard that they can't be coughed out.

      This past weekend was the Texas Laryngectomy Association Annual Convention and I got a lot of information on different products available. One was a thick packet from Luminaud dot com that lists a lot of different stoma covers to keep your hole moist. There may be some items you might like to have that you can order. In my convention freebie bag I got some really great long plastic tweezers called "Marty's Favorite Tweezers" that I started using in place of the metal ones I had that I kept nicking my stoma hole with. UGGHH. You can order the plastic tweezers from the Luminaud website. The tweezers come 3 to a pack for $2.50. Having 3 pair is great to have a pair in the bathroom, my night stand and in my purse bag that I keep my voice prosthesis adhesive supplies and stoma covers. I also use long padded makeup applicators to wipe the inside of my stoma hole to remove gummy mucus because qtips and the square makeup remover squares can leave cotton material behind and you can inhale those fibers so I use the makeup remover applicators and rinse them under hot water and let them dry and I use them over and over when needed. You can find the long makeup applicators at the end of the makeup isle in most drug stores and they're not expensive.

      I would suggest taking some form of Mucinex to cut back on your mucus production. I know the some of the "Mucinex" pills are awfully large and can get stuck on a voice prothesis. Another Laryngectomy friend from my support group takes Robutussin DM to help with his mucus. I know right after having my Laryngectomy surgery, your body has to adapt to the new breathing so you produce a lot of mucus within the first year. It does get better over time and you get used to a routine that works best for you. I can't take "Mucinex" because I am allergic to the tree bark ingredient so I use "Similasan Mucus Relief" which is hard to find here. I buy mine at Walgreen's because Walmart doesn't carry it.

      Like Ziggi, I carry a bag in my purse that contains plastic long tweezers, a long makeup applicator, small pkg of kleenex to cough with (you never know where you are going to be and need that kleenex right then!), my voice prothesis cleaner and stoma adhesive remover and application materials.

      I had Head and Neck cancer Stage 4 in my Larynx and one Lymphnoid in 2011 and went through 35 radiation treatments and 2 chemo. I had to miss my 3rd chemo because I was so sick and bone thin. I had recurrent cancer Stage 3 the end of 2012 that caused me to have a complete Laryngectomy and right side of my neck dissection removing 22 lymphnoids and half of my Thyroid February 4th of last year.
      God Bless everyone here that has had to adapt to being a neck breather. This is a huge life changing experience with so many things that we can't do anymore and its been really depressing at times. I talk to God and thank him every day for letting me live.

      I hope some of my suggestions help :)

      about 7 years ago
    • Ziggi's Avatar
      Ziggi

      Oh let me also add.... if you feel 'dry' in the stoma, sit in the bathroom with the hot water running in the shower to get moistened up enough to cough the gunk out!

      about 7 years ago
  • Shyamalmunshi's Avatar

    Shyamalmunshi started following

  • Shyamalmunshi's Avatar

    Shyamalmunshi asked a questionHead & Neck/Throat Cancer

    How to avoid formation of mucus plugs.

    • cam32505's Avatar
      cam32505

      I would recommend a humidifier, because it's dry indoors in the winter. Also, maybe try a netti pot to keep your sinuses clear. There are also nasal sprays you can use to keep your nasal passage moist. Steam is also good to keep the sinuses clear.

      about 7 years ago
    • dancow1's Avatar
      dancow1

      I use saline nasal spray, magic mouth wash (pharmacy will have to mix) or mu guard, biotine mouth wash. Eventualy you will find the combination that works well. Good luck and god bless you.

      about 7 years ago
  • Shyamalmunshi's Avatar

    Shyamalmunshi started following