• sjej1's Avatar

    sjej1 started following

    Question: Chemo

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    sjej1 asked a questionColorectal (Colon) Cancer

    Hair loss

    6 answers
    • Shansie's Avatar
      Shansie

      I had 12 rounds of oxaliplaton, 5 F-U and leucovorin, the 12 rounds of irinotecan and avastin, lost body hair, eye lashes and eyebrows and about 75% of hair so quite thin but still looked OK. I heard it was unusual to loose all your hair but that that did happen to some. My numbness due to oxy went away after I finished that treatment and onset of menopause reversed after I finished the 2nd treatment. Hair grew back fine but just started irinotecan and avastin again, so waiting for it all to happen again! All the very best to you.

      over 2 years ago
    • IKickedIt's Avatar
      IKickedIt

      Hair loss is different for everyone. My hair thinned tremendously about halfway through, and then tapered off. I think my husband later told me that he noticed empty patches later in my treatments (what a sweet guy...didn't mention it to me until after I was all done. I couldn't see it anyway). I just kept wearing neat hats and counting down the days until I crossed that finish line. Hair grew back differently, but I remember it came back pretty quickly.

      Oxaliplatin is the gift that keeps on giving. The numbness may get worse before it gets better, then should improve. As we all know, everyone responds differently. For some people, the neuropathy completely resolves (although it takes time, like months or more than a year), while for others, it never completely resolves. Give it time, but continue to discuss with your doctor.

      I was also taken off the oxaliplatin after 8 or 9 rounds and sailed to the finish line. More tolerable without the oxaliplatin. What a harsh drug.

      over 2 years ago
    • alivenwell's Avatar
      alivenwell

      I lost some but not all of my hair. My nails became very brittle. Nasty stuff, indeed. I hope it also destroyed those stem cells that spread cancer. It got everything else.
      My hair grew back and I took B6 to regain feeling again. Green leafy vegetables (probably magnesium?) like spinach also help heal damaged nerves. I ate salads a lot both during and after chemo.

      over 2 years ago
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    Question: Hair loss

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    sjej1 asked a questionColorectal (Colon) Cancer

    Oncologist in Chapel Hill area

    • chrismorr's Avatar
      chrismorr

      Hi, if you would like to email me - [email redacted] I can tell you a little about my (good) experience at Duke, who I saw, etc. Duke is excellent, so is Wake Forest in Winston-Salem but of course Duke is much closer to you.

      over 2 years ago
    • sjej1's Avatar
      sjej1

      Chrismorr - email was redacted but I would love to hear about your experience - it will readact my email too - I am on facebook Sally Jean Jones? You can private message me and we can exchange emails? I am willing to post mine here - [email redacted] - just in case - Thank you so much!

      over 2 years ago
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    sjej1 asked a questionColorectal (Colon) Cancer

    Vomiting precipitated by brushing my teeth?

    • geekling's Avatar
      geekling (Best Answer!)

      Try keeping your toothbrush but changing your toothpaste.

      Make sure you are using an extra soft brush. Brush lightly. Your gums are not pans to be scoured.

      Ask your doctor for a special brand. The name escapes me but it might be 'Biofine'..unsure.

      If that doesn't work, brush with organic turmeric powder and then a second time using a teeny amount of baking soda or the Biofine.

      Don't forget to brush clean the surface of your tongue with the toothbrush.

      Use a rinse as well. I like(d) a brand called Vita Myr.

      You could also try the ancient technique of "oil pulling". This is, basically, swishing coconut or sesame oil (a tablespoon) around in you mouth for several (10-20) minutes. This is to clean the palate and draw bacteria and bad poisons out of your mouth. Brush right after oil pulling. As a bonus, your mouth feels very clean and your teeth get slightly whiter.

      over 2 years ago
    • CAS1's Avatar
      CAS1

      Why not try just plain baking soda..Fluoride can cause a host of issues..rinse with diluted hydrogen peroxide...1 to 1..cheapest and best mouth rinse ever..

      over 2 years ago
    • GregP_WN's Avatar
      GregP_WN

      I had, and still do, serious gagging problems. Do you find that it's from the toothpaste or just from having something in your mouth? I have had to work on it to keep from gagging.

      over 2 years ago