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    User: CancerNews

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    snicole8 wrote on Susia's wall

    For me, it was scary that my oncologist didn't know what to do and couldn't give me a prognosis because it is such a rare diagnosis..he kept referring to one published case study for guidance on how to arrange my treatment. After a second surgery to explore and take liver biopsies, lymph node biopsies, and remove a portion of liver as a precaution, I had six weeks of continuous low-dose 5-FU and daily radiation. Neither was difficult..I didn't miss a single day of work during those six weeks and I only remember feeling a little bit queasy a couple of times. Surgery is always scary, and not a lot of surgeons have experience with this also. It's good to plan questions before visits and write them down before going and even better, to have someone go with you. Good luck! And feel free to ask any questions.

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    snicole8 shared an experience

    Radiation (External radiation )

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    Drug or Chemo Therapy (Chemotherapy)

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    Procedure or Surgery (Surgery)

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    User: GregP_WN