• SoCalGal's Avatar

    SoCalGal asked a questionNon-Hodgkin Lymphoma (NHL)

    Want to skip last treatment

    13 answers
    • Santana's Avatar
      Santana

      Well I have to say Chemo kills cancer 1st then it goes after you or you body next.

      My last rounds of chemo went like this.
      Was ordered to go and get 2rnds and the PET scan after my 2nd round showed great improvement in the tomor, but they ordered 2 more.
      The scan after the 4th show the tomor had increased in size than bigger then before.
      Chemo was no longer working on the cancer, but drop my imune system to 0/Zero/Nada by the end of the 4th round and I got sick end up in the hospital for 2weeks.

      I must say be careful putting Toxic chemo into you body if not needed.

      Glad to hear you are doing better.

      Santana

      over 5 years ago
    • barryboomer's Avatar
      barryboomer

      I'm not so sure of all the advise above. None of us are Docs or Researchers and even the Docs don't know it all. They just read the studies done by the same companies selling the poison to the Docs to use.
      One more treatment MAY kill some more cancer cells but there will ALWAYS be a few left to multiply and come back stronger than ever.

      I FEEL that if you have a strongly reduced tumor load you want to build up YOUR immune system to get rid of the rest. It's sort of like an antibiotic. The antibiotic kills MOST of the bacteria but the immune system finishes up the job.

      I say NO More Poison. Big Pharma can change their mind next week from 4 treatments to 8 treatments etc. etc. etc. Nothing is set in stone. It's a big business and the Docs are just following guidelines that change all the time.

      I say the time for killing is over and the time for healing should Begin.

      Barry

      over 5 years ago
    • workit's Avatar
      workit

      In lymphoma patients, exercise reduces Peripheral neuropathy:

      Exercise program improves therapy-related side-effects and quality of life in lymphoma patients undergoing therapy.
      http://www.ncbi.nlm.nih.gov/pubmed/24478323
      Ann Oncol. 2014 Feb;25(2):493-9. doi: 10.1093/annonc/mdt568

      over 5 years ago
  • SoCalGal's Avatar

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  • SoCalGal's Avatar

    SoCalGal shared an experience

    Drug or Chemo Therapy (Chemotherapy): Just had my second infusion today. Took six hours. I'm a little tired but still was able to come home and cook dinner for the family and get some things done around the house. Had a light dinner and no nausea or stomach upset

    4 Comments
    • JHARAKA's Avatar
      JHARAKA

      my husband has large diffuse B cell, one treatment of R chop and did really well too. The nausea never bothered him, but did get really tired about the 5-8th day after, then his energy picked up again. Remember the water! I really do think its important. We go in 10 days for our next, he has 5 more to go,3 week apart. Good luck to you, I know its so hard being a Mom and taking care of yourself!

      over 5 years ago
    • acshipway's Avatar
      acshipway

      Hi SoCal, sounds like is going good. Glad to hear you aren't having any particularly nasty side effects.

      over 5 years ago
    • peacelover1950's Avatar
      peacelover1950

      Hi SoCalGal. Glad that you aren't having too many problems with your treatments. Just remember, before long they will be done, you will get your scan and join others of us who are in remission! And then we will all celebrate with you! :)

      over 5 years ago
  • SoCalGal's Avatar

    SoCalGal shared an experience

    Side Effects: Hair and eyelashes are falling out today. Exactly 12 days after 1st infusion. Even though I expected it, it still is sad. I plan to allow myself to grieve for awhile and then then focus on all the good things.

    3 Comments
    • peacelover1950's Avatar
      peacelover1950

      My hair fell out at exactly that time, but my eyelashes and eyebrows waited until almost the end of my infusions (in December). I had R-CHOP for 6 treatments 3 weeks apart. I am beginning to see the tiniest bit of peach fuzz on my head though! I have been asking my husband to check out my head with a magnifying glass and flashlight! Excited much--yes ma'am I sure am.

      almost 6 years ago
    • BvonM1234's Avatar
      BvonM1234

      My hair started coming out in about that same time frame. I cried the whole time while they cut off my hair. Once it was gone, I was OK. I still have eyebrows and lashes, but they are slowly coming out. Nothing is growing back. But I had a clean PET scan which shows no cancer at all after 2 rounds. I'm doing EPOC for 6 treatments every 3 weeks. I got 2 really cute wigs, both of which are in styles that I worn before. Even the owner of the salon where my daughter works couldn't tell I was wearing a wig. But I think I look like Andy Warhol in them. There's nothing like the real thing.... Best to all of us.

      almost 6 years ago
    • DJS's Avatar
      DJS

      I've written here before that I was more upset at the prospect of losing my hair than I was with the diagnosis of cancer. By the time I actually lost my hair I was armed and ready with an assortment of wigs, and wound up helping other women have fun with the whole process, too. You can rock this, if you choose to. If you need some guidance or giggles about this, don't hesitate to contact me. I'm on the flip side of this now, and my new hobby is endlessly staring into the mirror waiting for my bottom eyelashes to reappear, like daffodils in the spring.

      almost 6 years ago
  • SoCalGal's Avatar

    SoCalGal wrote on Summergirl9's wall

    Hi Summergirl. I just had my first chemo infusion last week and so far, so good. The fear of the unknown has been worse than the journey so far. If you feel comfortable, let us know where you are at in your journey and we can share our experiences with you.

  • SoCalGal's Avatar

    SoCalGal shared an experience

    Drug or Chemo Therapy (Chemotherapy): Had to do the R-CHOP infusion over 2 days so yesterday and today for around 4 hours each day. Turns out that my fear of the unknown was worse than the actual procedure! Due to anti-nausea mess they put in the IV, I am feeling great and no nausea as of now. Was given 2 prescriptions for anti-nausea meds to start taking tomorrow. Curious to see how I will feel. Glad that it is a holiday so I can rest before going to work Thursday.

    1 Comment
    • DJS's Avatar
      DJS

      That was exactly my experience! I hope you have the same (relatively) easy ride that I did, with the same wonderful results. Best of luck!!!

      almost 6 years ago