• sofarsogood's Avatar

    sofarsogood started following

    User: CancerNews

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    sofarsogood posted an update

    Where can I get help with "skills for living?" Cooking--I started a fire, and cut myself with a knife. Balance--I have difficulty walking, especially on uneven ground, changing directions. I cannot stand on one leg.

    I feel like an accident waiting to happen. I have difficulty with sequencing, I can't seem to get and stay organized. Where should I go for help?

    1 Comment
    • DaveWaz's Avatar
      DaveWaz

      Have you contacted the American Cancer Society? Their phone number is to the right and bottom of this page. They can tell you what local resources are available. Additionally, you can contact your cancer center/hospital. They may have a suggestion, too.

      over 6 years ago
  • sofarsogood's Avatar

    sofarsogood shared an experience

    Side Effects (Nerve damage (peripheral neuropathy))

  • sofarsogood's Avatar

    sofarsogood shared an experience

    Side Effects (Chemo brain): I'm beginning to sense what side effects will be permanent, I.e. Chemobrain, neuropathy (including difficulty swallowing, restless legs, and poor balance.)
    I need to make some changes, and I want help with this.

  • sofarsogood's Avatar

    sofarsogood wrote on Paprika's wall

    No word, how are you doing?

    3 Comments
    • Paprika's Avatar
      Paprika

      hey! doing really well with taxol!
      Scarey thing today though, my job is running out in Sept so I had to go on a job interview today (always scarey), but with no hair, do you think they'll notice I am fighting cancer? Due to regulations, they can't ask about my health--but it's like chatting while a very large elephant in sitting in your living room....I did wear a pretty head scarf. No questions were asked about my health but it was WEIRD anyway! Wonder if they will offer me the job? Humm...

      over 6 years ago
    • Paprika's Avatar
      Paprika

      Just slugging through chemo. Just got thru one, but only 2 more Taxol rounds to go! Yippe!! Sorry for slow response but poor little body is getting tired of being poisoned! After a full day of work, after dinner I just qonk out. zzzzz-zzzzzzzz Whew. But oncologist says I'm doing really, really well! HOW are you?????

      over 6 years ago
    • sofarsogood's Avatar
      sofarsogood

      Great to hear from you. Those last few treatments are hard, I know. But let me know how you feel after the last one. I had this like lost feeling, like, what do I do now? Finally after a year I no longer feel so much like a cancer patient, and ready to move on. It sounds good to me! Take care, I'm always thinking of you.

      over 6 years ago
  • sofarsogood's Avatar

    sofarsogood asked a questionBreast Cancer

    when I think a person is getting incorrect or insufficient medical advice, Should I say something , or respect their Dr/patient relationship

    11 answers
    • JennyMiller's Avatar
      JennyMiller (Best Answer!)

      I think it is okay to make a comment -- if nothing else, it may be food for thought. Everyone is different and may be taking different paths on their journey -- and for their own reasons. For example, I personally would not choose the ice cap to save my hair or the ice mitts for my nails or chew ice chips to prevent mouth sores --- only because I want that chemo to reach every square inch of my body -- but then I can have a very paranoid nature where someone else would feel very differently. So -- I feel that comments should be welcome -- and the end decision should be the result of consultation with their oncologist. I have benefited so much from different comments -- such as taking Claritin for bone pain after Neulesta Shot and it really worked. So, as far as I am concerned, keep the comments, questions and answers coming.

      over 6 years ago
    • nancyjac's Avatar
      nancyjac

      Just like all of our cancer experiences are unique, so are our courses of treatment and the reasons for making the decisions we make. It is similar to the glass half empty or half full analogy. Those same 100 women who have had cancer treatment and are in remission from a lumpectomy have a greater risk of being killed in a car accident or a heart attack than the 10% risk of subsequently developing cancer in the other breast. Women who decide against prophylactic mastectomies (single or bilateral) aren't necessarily ill informed, they may just have made a different decision.

      over 6 years ago
    • MichaelV's Avatar
      MichaelV

      In this world of information we all must keep in mind that the doctor or doctors we are dealing with are just like you and I only they studied medicine in stead of plumbing, household engineering, business, the law, physics, automotive engineering, etc. you get the idea. No one person has all the answers and many times it takes a collection of people to arrive at a logical suggestion being presented with known facts about you. Ask away until YOU feel comfortable that you are doing what is right for you and not what is right for the professional providing the information. Mainstream is really wide and runs at a face pace and it is easy to drown in it, but perhaps you do not want to end up where it is going to take you. You are the captain and you get to steer your own ship. One really great example of this thought train is Suzanne Somers book, :Knockout". I think every woman faced the the decisions breast cancer brings should read this book:

      http://www.amazon.com/Knockout-Interviews-Doctors-Cancer--And-Prevent/dp/0307587592/ref=sr_1_1?s=books&ie=UTF8&qid=1332098869&sr=1-1

      Know you might ask, "What the heck do I know, I'm a man?". I have lost too many friends and family to cancer and one thing I have learned is there are many options because each case if as different as a persons face. Find what is good for you may not work for the next person, choose what makes you feel confident that you will win the battle. OK, leaving my soapbox now.
      All my best to you in your process and remember you are not alone in this battle.
      Wishing you all that you wish for yourself.
      Michael

      over 6 years ago