Hi Sophie, check out myeloma.org for some great information... they also have a hotline you can call. There's also a Bay Area Myeloma Support Group. monthly meeting was today, but there's always next month. Here's the link. http://sfbayareamyelomasupport.org/ . Stay positive and active and hang in there until they can find a cure. There's a lot of research going on. Meeting with others who've stayed alive for over 10 or 15 or more years is comforting and shows it's not a death sentence. I was diagnosed last February, and was told I'm Stage III. After 6 months of treatment with Revlimid, Velcade & Dexatron I'm in complete remission ! The current treatments as well as prayer and meditation and deep breathing work for me.