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    soxfan shared an experience

    Procedure or Surgery

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    soxfan shared an experience

    Celebration (Remission): party for family and friends to celebrate the fact that we had made it through treatment into remission and to attempt to thank everyone for their support. I can"t thank the support network enough. My strongest support came from my wonderful wife and son and daughters. I think it was a rougher road for them than me.

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    • SherrySwett's Avatar
      SherrySwett

      Your journey sounds very much like mine. I had imagined that when I got out of the hospital there would be people that I would meet and to visit with but I didn't know where. I appreciate this board and this one in particular specifically on mantle cell lymphoma. You don't find very many of us.

      over 4 years ago
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    soxfan shared an experience

    Clinical Trial (shingles vaccine): participated in national trial for a shingles vaccine

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    soxfan shared an experience

    Side Effects (Fever): After treatment 3, the intense treatment to incapacitate my bone marrow, I went home and then had a fever and some bleeding from the bowel. I called my Dr. and was told to get back to the hospital asap. I spent the next few days receiving antibiotics and being tested for potential infections and prescribed as endoscopy and colonoscopy which I received a couple of weeks later. During the early treatment I had some nausea but received medication that helped immensely. I did lose my hair. I lost most of my appetite but that could have been caused by the food quality at the hospital.

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    soxfan shared an experience

    Drug or Chemo Therapy (Chemotherapy): I sought an agressive chemo treatment option and stem cell transplant at the University of Chicago. I was hospitalized during the periods of treatment for 4-5 days for the first 2 treatments in September and October. Each treatment was about a month apart. After each of the first 2 treatments, I returned to work until the following period of treatment. Treatment 3 was intense chemotherapy designed to prepare for the stem cell transplant and to get rid of lingering cancer and prepare the the bone marrow for stem cell collection. I could not return to work at this point because I was very susceptible to infection and at this point the the bone marrow had become inactive. I was given medication to restart the cell production in the bone marrow. A week later I had stem cells collected. December 2, 2011 I returned to the hospital for more intense chemotherapy and the stem cell transplant where my collected stem cells were reintroduced similar to a blood transfusion. I was released December 18, 2011.

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    soxfan shared an experience

    Oh No (Diagnosed): lump in lymph node below right ear. Family physician recommended seeing ENT. Had needle biopsy with no sign of disease. Went back to Family Dr recommending that I have lump removed. Surgeon removed lump. Biopsy led to confirmation of lymphoma which Dr's had suggested but more specifically, mantle cell lymphoma. Made appointment with Oncologist and had diagnosis confirmed. Recommended chemo treatment over several months but also suggested that I seek a second opinion from a teaching hospital to review diagnosis but also discuss a future potential stem cell transplant which I was informed that I would need. I scheduled an appointment at the University of Chicago. The Dr confirmed the diagnosis and course of treatment including stem cell transplant.