• spamgirl24's Avatar

    spamgirl24 wrote on pudgysmudgy's wall

    hello - my uncle was diagnosed with bile duct cancer last week,but i don't know how they do that with a few MRI's. i believe it's metastatic because there are tumors in the liver, in the back, and in his shoulder. i am afraid he's not getting the proper care. he's in the hospital because he can't eat, but not really being treated by an oncologist. can't do petscan to see where else the cancer is because it's an outpatient procedure?! doctors are fussing over his problem with not eating and he has a procedure to put in a stent or gastric bypass in his stomach/intestine. he's complaining of constantly being nauseous. did you have the same issue? thank you for sharing your story and for any help you can provide. i am happy to chat with you to see if that would help you. although i've only gone through this as a care giver for my husband who's 2 1/2 years into remission with esophageal cancer. thanks, dawn.

    1 Comment
    • pudgysmudgy's Avatar
      pudgysmudgy

      Hi, very sorry to hear about your uncle. I had a stent placed in my pancreas when I was diagnosed as the tumor was pushing on the duct that runs through the pancreas. My cancer originated outside the pancreas in the Ampulla of Vater, but has also been diagnosed as cancer of the duodenum. If your uncle's cancer is metatastic to the liver, etc, it sounds like it is pretty advanced. Someone needs to insist on an oncologist asap. The other doctors will not do much to treat the cancer. He needs to be told his options right away so if he chooses to do treatment no time is wasted. I was not nauseous with my cancer, just very o jaundiced. He needs to have an oncologist determine whether he needs a PET scan. The oncologist might determine he had enough info from the MRI....I had a CAT scan with contrast which gave my surgeon and oncologist the information they needed to treat me.Find the one doctor in charge...there should be one, and request an immediate referral to an oncologist.He needs to know if he is operable, and if not, and he wants to fight, he needs a game plan for treatment. Hope you can get around the circle of doctors and get him some help!
      Janet

      almost 2 years ago
  • spamgirl24's Avatar

    spamgirl24 shared an experience

    Procedure or Surgery (esophagectomy): stomach is smaller to my husband has to eat smaller meals. there's also this thing called dumping. if you eat oily food, sugary, or too rich, the body doesn't process it properly and he gets shaky, exhausted, and sleepy. other than that, he it is Jan 2015 and it's been 2 1/2 years since the surgery. things are going well.

    2 Comments
    • sallas21's Avatar
      sallas21

      Two and a half years! That's great news.

      almost 2 years ago
    • Nanchie's Avatar
      Nanchie

      I have just completed surgery so go to hear 2 year survival rate .

      10 months ago
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  • spamgirl24's Avatar

    spamgirl24 posted an update

    hi everyone,

    my name is dawn and my husband (38) was diagnosed with esophageal cancer in november of 2011. the pet scan revealed that the cancer had spread into the lymph nodes around the tumor and in the kidney area. so technically he was at stage 4a. we were able to get a second opinion and started treatment at ucsf mid december. his chemo regimen consisted of cisplatin and xeloda (pill form of 5-FU). the xeloda really did a number on him and he lost 20 pounds in 2 weeks. he was admitted to the hospital for dehydration and got a g-tube. the oncologist has changed his regimen and my husband is at the point where he does not need to use the g-tube to eat anymore. that first chemo was really tough and if you guys are interested, i can email you or post more details. this new regimen, carboplatin and paclitaxel, is much smoother and i am very thankful for that. we just finished the 3rd chemo session last wednesday and will be doing more scans in a couple of weeks to see if things are improving. at any rate, i just wanted to say hello and give a little background. i am really excited to have found this forum and look forward to getting know you guys.

    livestrong!
    dawn

    1 Comment
    • Rachel95991's Avatar
      Rachel95991

      Hi my husband is also going thru Chemo with caroplatin and paclitaxel. He just finished radiation 28 treatments and feels his esophagus is open but he just has no taste for food yet. The carboplatin and paclitaxel gives him a lot of joint pain about day 2 to 3. He is getting 99% of his nutrition via the tube still. We hope he can transition to only needing it to supplement.

      over 4 years ago