• Spideyman's Avatar

    Spideyman started following

    User: CancerNews

  • Spideyman's Avatar

    Spideyman wrote on po18guy's wall

    we are going back to the CHOP tomorrow.....I will keep you posted. Again ,thanks for input and of course your ear....I hope you are feeling well.
    Paula

    1 Comment
    • po18guy's Avatar
      po18guy

      FYI, my oncologist will not use CHOP against T-cell lymphomas, as it has a poor record against it. He used a combo of EPOCH and GVD to put mine in remission. However, T-cells are widely varied in their response to chemo, so what I received may not be effective in a different patient. I do know of one patient in remission from CHOP, however. But, whatever is used, a rapid response must be seen, or I think that treatment should be stopped and an alternative sought.

      over 4 years ago
  • Spideyman's Avatar

    Spideyman wrote on po18guy's wall

    She is being treated with a doctor from Long Island Jewish hosptial on long island but we did get a 2nd opinion from a doctor at Sloane Kettering who soley specializes in P-TCELL so now the 2 doctors are I think she actually had 9 treatments, no scans . Lympnodes are large,rash is worse then ever,bloated like a balloon......not good......

    1 Comment
    • po18guy's Avatar
      po18guy

      Well, the important thing is to make sure that the toxicity of any given treatment does not give the cancer a boost in its quest. If it does not respond immediately and well to an HDAC inhibitor, some other treatment must be sought out. Yet, with standard chemo, we have about two chances to defeat this, so treatment must be closely monitored and stopped if it is doing more harm than good.

      over 4 years ago
  • Spideyman's Avatar

    Spideyman wrote on po18guy's wall

    Hello....unfortunatley I am back blogging....so update on my mother is she had done 3 rounds of the romidepsin and her doctor does not feel as if it is working. how many rounds did you do before you could see signs it was working? how soon after your first treatment did you have another scan Any input would be greatly appreciated thanks!

    2 Comments
    • po18guy's Avatar
      po18guy

      I was scanned every other month, and the response appeared to be immediate. I was fighting stage 1 disease at my relapse, since I was scanned shortly after completing chemo.

      Your mother and I may have the same general diagnosis, yet our malignancies may be markedly different, since T-cell lymphomas, especially the Not Otherwise Specified (NOS) or Unspecified (US) subtypes can be substantially different from one another.

      Immunophenotype is also increasingly important in determining therapy.

      over 4 years ago
    • po18guy's Avatar
      po18guy

      Depending upon how aggressive your mom's variety is, it could be monitored for a bit longer, since the Istodax is generally low-toxicity. With salvage chemo, results must be seen immediately, or the chemo is simply teaming up with the cancer against the patient. Where is she being treated?

      over 4 years ago
  • Spideyman's Avatar

    Spideyman started following

    User: LauraL

  • Spideyman's Avatar

    Spideyman started following

    User: Elizabeth