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    spirithorse asked a questionColorectal (Colon) Cancer

    recurrance of colon cancer - no treatment left according to doctor.

    9 answers
    • Rosa's Avatar
      Rosa

      No doctor can tell you how long you are going to live. Keep looking for options, fighting for your life. There are many What Nexters who have done it. You can too!
      Keep fighting
      Blessings

      over 4 years ago
    • joyce1979's Avatar
      joyce1979

      John of God in Brazil is a spiritualist and healer. Check out these internet sites: John of God, Jao de Deus, Abadiania, or Casa de Dom Ignacio. With God, all things are possible.

      over 4 years ago
    • Lavonne's Avatar
      Lavonne

      I have been fighting this monster with my sister in law that has stage IV metasized colon cancer for 3yrs. We never listen to the Doctors when they give a time line. Only God knows that. She has also gone thru all the chemo options available. She did a clinical trial at M D Anderson in Houston when we had gone thru all the standard chemo. I would check on a clinical trial. There are many and some are using immunatherapy that takes your own cells and targets your immune system by a vaccine. Good luck and never stop fighting.

      over 4 years ago
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    spirithorse shared an experience

    Oh No (Cancer is back/Recurred ): Was cancer free from August, 2012 until April, 2013. I had 8 preventative chemo treatments. Was suppose to have 10 but had to stop because of neuropathy caused by occiliplatin. Found out April 25 that I have two tumors in my abdomen. One is 2" and the other is 1". Drs. have advised six weeks of chemo using folfiri, leucovorin and irinotecan. Since this chemo will be every other week I will only have three treatments and then they want to do another CAT scan. I am praying the chemo gets rid of the tumors and no other treatment is needed. Right now scared and very depressed.

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    spirithorse asked a questionColorectal (Colon) Cancer

    recurrence of tumor after surgery and chemo.

    6 answers
    • PaulaT's Avatar
      PaulaT

      I just recently had surgery (Feb 2013) to remove a tumor in my abdomen. Our situations sound very similar....I was diagnosed with colon cancer in Nov 2009, had surgery and found out 4 months later that it had metastasized in my liver. I had a liver resection in Aug 2010 and 12 round of 5FU, Leukovorin, oxalaplatin and was cancer free from May 2011 to June 2012 when the tumor in my abdomen was discovered. I did 6 rounds of 5FU, leucovorin, avastin and irinotecan which caused the tumor to shrink. Because there was no other occurrence of cancer, I had 6 weeks of radiation leading to the surgery two months ago - AND I'm now cancer free again. Because the margins of the tumor were dirty, I had radiation directly into my body on the operating table. My doctors feel there is no reason to do followup chemo so I'm back in the monitoring phase.

      So....I know how you feel. I was scared and thought I'd be looking at chemo forever when the tumor in my abdomen was discovered.....but now I'm cancer free again. I've learned that everyone's situation is different and to trust my team of doctors - I go to Mass General Hospital - and they are excellent - and my surgeon is amazing, he has done all three of my surgeries.

      I can give you some advise on the chemo you are about to begin, based on my experience. The irinotecan, for me, was really nasty stuff. I had extreme nausea and vomiting for the first two treatments until my doctor prescribed Emend. For me, it was like a miracle drug - really worked for the nausea and vomiting. It is very expensive but my insurance covered it at the highest co-pay tier, which for me was $45. I also had what the nurses called "anticipatory nasuea" where the day before I was scheduled for chemo I was horrible nauseous. I'd never heard of this but apparently it's not all that uncommon. I took lorazepam 1mg the day before and the morning of my chemo and that helped.

      One thing that has helped me get through these last three years is not to think too far ahead. I developed a "get through this" attitude when I was doing chemo and radiation. When I would see the doctors after completing that treatment, I'd try to go in with an open mind and not think too much about the what if's. So far, I've been told I'm not the "typical" stage 4 colon cancer person - and that works for me!!!

      over 4 years ago
    • spirithorse's Avatar
      spirithorse

      Thank you all very much. I am being treated at the Mayo clinic in Rochester. They want to do the chemo first and hopefully this will shrink the tumors or even get rid of them. Surgery would be the next option. I have absorbed everything but the problem I am having is major depression. I am on an anti-depressant but I can't shake this. I suppose I will call my doctor but I really hate taking so many pills. Anyway one day at a time and thank you all for your responses. It really helps.
      Kim

      over 4 years ago
    • Peroll's Avatar
      Peroll

      Kim, the depressiion you are experiencing is not your fault it is caused by the chemo. Chemo affrects tyhe seretonin levels in the brain which is what causes depression. It is chemical and not something wrong with your head. I am amazed at the number of people here on WhatNext that, like me , have experienced this but that thier oncologists, like mine, where not really aware of the depression cause and prepared to recognise and treat the depression. I do know that people respond to different anti-depressants so you may have to try a couple of different ones to find what works for you and it csan take a couple of weeks for any anti-depressant to fully work so it may take some time to get it all worked outy. Good Luck and let us know how else we can help.

      over 4 years ago
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    spirithorse wrote on GregP_WN's wall

    Hi Greg. I just posted an answer to the question about how you made it through and it posted two times. Can you delete one of those? Thanks. Spirithorse

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    • GregP_WN's Avatar
      GregP_WN

      Sure I can do it for you. If you want to do it, or if you have this happen in the future, click the "more" link, then select delete from the drop down menu.

      over 4 years ago