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    srkthemom wrote on greytmomm's wall

    Wonderful to see someone diagnosed 39 years ago is living a productive life. Thank you for posting. My daughter is 25 .

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    srkthemom shared an experience

    Drug or Chemo Therapy: This has kicked my 25 year old daughters butt. I am keeping her girls who are 4 twins as much as I can. I so wish that this was me instead!

    1 Comment
    • Sk123's Avatar
      Sk123

      Hang in there mom, Im praying for you and your daughter.....

      over 5 years ago
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    srkthemom started following

    Question: Headaches and Achy

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    srkthemom asked a questionHodgkin Disease

    Headaches and Achy

    6 answers
    • srkthemom's Avatar
      srkthemom

      THank you so much for your answers. Although I sometimes feel like this is part of the process it is so very hard. Hearing affirmations help.

      over 5 years ago
    • HeidiJo's Avatar
      HeidiJo

      Chemo was cumulative for me, I became weaker with each treatment. I did get a nasty migraine with my first treatment, so they gave me preventative to take. I know it is hard on you too, many a day I lay there thankful that it was me and not my kids suffering.

      over 5 years ago
    • WonderKitty's Avatar
      WonderKitty

      I know it won't be an immediate solution, but make sure she is drinking plenty of water. Help flush out some of the toxins building in her system. Does she receive any white blood cell-building shots? I had to have Neulasta, and it kicked my butt. I didn't get headaches, but I got lots of bone pain. Its terrible. If she doesn't want to take strong meds, she could try meditation, or hypnosis. Something to calm her and take her mind away from the pain.

      over 5 years ago
  • srkthemom's Avatar

    srkthemom asked a questionHodgkin Disease

    mouth hurts bad taste after 1st round of chemo

    6 answers
    • cllinda's Avatar
      cllinda

      I had both dry mouth and sores during chemo. I used a lot of the Biotene products such as mouthwash, toothpaste and gels. It did help. But if it gets worse, I have heard of a MAGIC Mouthwash that others have used. I think it's a prescription and that helps with any kind of mouth issues.
      Try to serve foods with plastic silverware. And use plastic cups. It helps to lessen the metallic tastes.
      I also liked to have lemonheads candy and fruit chewy snacks (Like kids eat) to help with dry mouth. My husband would stock up on the cheapest brand of fruit snacks and they would be in goofy shapes like SpongeBob, SquarePants. I had a box at the hospital and the doctor thought it was funny. But you have to do what you have to do.
      Do call the doctor's office. I am sure the nurses can help guide you so that you can help your daughter. This chemo thing is very rough on the patient, as well as those who love her.
      Hugs to both of you.

      over 5 years ago
    • Kathy1's Avatar
      Kathy1

      This happens...is she on ABVD? Suggest she suck on ice chips. She should start doing this while being infused. Stay away from spicey and citrus foods. Watch for mouth sores. Use a soft tooth brush and do not use mouth products that has alcohol in it. If sores become bad the doc can give her a prescription. Stay away from metal utensils...plastic only. During this time food will not taste...she will find something she can eat. Boost or Ensure are great because you get some nutritional value. Relax she will not eat like before. That is normal. I was stage III and have been in remission for a little over two years so this is very fresh in my mind. Wish her well a and lots of prayers!

      over 5 years ago
    • srkthemom's Avatar
      srkthemom

      Yes she is on ABVD. Thank you guys so much.

      over 5 years ago
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