• stanhartke's Avatar

    stanhartke asked a questionRare Cancers

    Thyroid Caner - Better off not knowing?

    5 answers
    • CrazyHarry's Avatar
      CrazyHarry

      As they told me, thyroid cancer is the the gentle cancer. I had rectal cancer first stage 2. Then on my first physical following my epic battle they found bumps on my thryroid. Turned out that I had stage 3 thyroid cancer. Had a very "ungentle" operation to remove thyroid and lymph nodes in my right neck where they found 7/36 malignant. I was told that these cancers are extremely slow growing and 99% curable. Actually, I waited almost 4 minths before I got the surgery. Drove me crazy waiting. Based on what I was told and read, the article is probably correct. But with my lousy genes, I wasn't about to live with it.

      Unusually for stage 3 or below thyroid cancer, the oncologist isn't even involved. I met with mine anyways and he was very reassuring.

      As for loving thyroid-less, I've tolerated the medical aspects of it very well. No big issues keeping the thyroid replacement levels correct. At least for the past 6 months.

      And of course there the complications of surgery to worry about, vocal cord damage, swallowing problems, nerve damage, etc. I was fortunate to have an extremely talented surgeon who took almost 7 hours to clean up the problems. Besides the unrelenting pain for 4 weeks post op as well as numbness that is still resolving itself, I'm doing quite well. Back to work, etc.

      Your are right to be scared. I was totally freaked out. And at times I'm not sure there was enough lorezepam in the world to help with my anxiety. But I made it and so can you, no matter what oath you take.

      Best wishes

      almost 3 years ago
    • cam32505's Avatar
      cam32505

      I was scheduled for a D&C to check for uterine cancer, but I got a cold. I went to my pcp to get something to get well so that I wouldn't have to cancel the D&C. During his exam, his found a lump on my thyroid and wanted to send me for an ultrasoung. I told him I couldn't because I was already going for the D&C and expected to have surgery. Well, I had uterine cancer and it took 7 months to treat it. By then, I forgot all about the thyroid. Well, follow-up pet scan revealed the thyroid cancer, so needle biopsy confirmed it. I was stage II. I had surgery and radioactive iodine treatment to eliminate my thyroid and any remaining thyroid tissues. It's been 2 years, and I haven't even come close to having normal thyroid numbers, but I think I'm finally getting close. The problem is that it takes 2 months every time they change the dosage before the blood test will reveal the changes. I started with 200 mcg, and am now down to less than 125 mcg. Unfortunately, they dropped the dosage slowly; therefore, taking longer to get to normal.

      almost 3 years ago
    • stanhartke's Avatar
      stanhartke

      Thanks for the info. Barryboomer, I actually feel great physically; minus the anxiety and racing thoughts. My prior 2 cancers came and were symptom-less and I was the healthiest sick person I knew at the time. My thyroid tsh levels all came back normal in blood work also. My prior PET scans did not indicate any hotspot around my thyroid, so I appreciate your story cam32505. My endocrinologist could not tell me if thyroid cancer would routinely show on a PET scan because PET scans are not protocol for that type of cancer. At least in your case, it was detectable in one. I have hopes that this is nothing, but being worrisome about health has been routine for me since my recovery. Thanks for the kind words CrazyHarry and cheers to your recovery.

      almost 3 years ago
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