• Staynaliv13's Avatar

    Staynaliv13 wrote on HerbGardener's wall

    Ok... so are you incognito here??? Or just no pic?? HerbGardener.... is that a new s.name?

    1 Comment
    • HerbGardener's Avatar
      HerbGardener

      Well, I guess it's a new name to you, and I just haven't put a picture in yet. I don't intend to be incognito. Am I?

      2 months ago
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    HerbGardener wrote on Staynaliv13's wall

    Hey Art, I'll be curious to see what kind of comments you get here about CC.

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    Staynaliv13 asked a questionLung Cancer

    Just curious about BIG c survivors need for a support group post treatment?

    8 answers
    • cards7up's Avatar
      cards7up

      I'm a member of Inspire and we used to have the Meeting Bus once a month online! It would say what you were bringing for food/drinks/music, etc. It was all virtual of course but it was fun. Then again we meet every day on Inspire and help others by answering their posts. There are many survivor clubs on FB including EGFR, ALK, and now even immunotherapy drugs Keytruda/Opdivo, Tecentriq. So you just do what you've been doing and make it private where you invite others to join you or open to the public. Good luck!

      2 months ago
    • Staynaliv13's Avatar
      Staynaliv13

      Yup...we celebrate birthdays.... back a few years ago,,,, we'd try to get a party atmosphere going.... with decorations,,, posting music,,,, & just general bday stuff. We've also had a Woodstock Anniv. party (8/15),,,, where we posted our fav groups performances... Our dream of a retreat (including a 4000 acre ranch in Montana).... are still lively posts that are brought up from time to time.... gOOd to hav some fun!!

      2 months ago
    • geekling's Avatar
      geekling

      I would like to tell you about a survivors' group I just had the privilege of joining. Anyone can go. It is simply a matter of luck, determination, and donation.

      https://m.facebook.com/story.php?story_fbid=1641714555873359&id=136074333104063&refid=17&ref=bookmarks&_ft_=top_level_post_id.10212574514571516%3Atl_objid.10212574514571516%3Athrowback_story_fbid.10212574514571516%3Athid.1043535560%3A306061129499414%3A2%3A0%3A1504249199%3A4709954233952331096&__tn__=%2As%2AsH-R

      If the link doesnt work, please look up www.riverdiscovery.org and Wilderness River Outfitters.

      Never before in my life have I allowed or experienced such deep concern for my well being. In the middle of a wilderness, along the River of No Return, in Idaho, a few wonderful people made my success and reorientation their mission and their joy. When even four limbs would not allow me to climb boulders to a natural hotspring, these people offered more than assistance. They made it plain that getting me to the experience was their goal and that my success was their happiness. There was no way I could fail because it would have denied these generous people their goal.

      When I sat in that hot rub my aches and pains disappeared. I remember Sherry and Alex most because their eyes revealed that my happiness and self realization was their goal; that their happiness and hopes depended on me feeling hale and confident. It was difficult for me to trust and follow Larry up a new rock path but, for what may have been a first time, I placed complete trust in him and followed as best as I could while he was always either holding on to me or within reach.

      The best description I have yet found is a life affirming renewal. I broke down that night at campfire because my heart was open and grateful and I havent really felt that way very much from my heart source. I am somewhat reborn to the wonder and joy I knew before cancer and to a faith that I used to understand but now feel in the deepest places of my heart and soul.

      I urge you to check them out, to apply for an adventure, and to donate whatever possible.

      www.riverdiscovery.org

      I wish the American Cancer Society would support this type of reintegration into society. It is needed for folks to again become productive members born of esteem and restored sense of self worth that treatments, by their very nature, cant help but to destroy.

      Best wishes to you and your group.

      2 months ago