• kalindria's Avatar

    kalindria wrote on Stellasmom's wall

    Hi Stellasmom and welcome to WhatNext! I'm so very sorry to hear of your diagnosis but you've found a great place to ask questions, get information, and share experiences.

    Almost 6 years ago, I was diagnosed with stage 4 fallopian tube cancer and I've had a couple of relapses. I'm still getting chemo but feeling good. I'm just back from a short trip to California to play with my grandkids and see my one daughter's new home!

    Anyway, some time ago, I recorded a series of videos for WhatNext about my cancer journey. You may find them helpful. I've included a link at the end of this message should you wish to check them out.

    WhatNext.com is a great place for everyone, from the newly diagnosed to those of us who've been living with cancer for some time - friends and loved ones too! While you're here at WhatNext.com, check out the questions and experiences of other folks here. You can find people who've had the same cancer, surgeries, chemotherapy and experiences should you wish. It's often reassuring to know others have been through what you're facing and thrived. I also recommend the PINBOARD - there are often humorous or uplifting posts that can make your day. Definitely worth checking out.

    https://www.whatnext.com/video_pages/ovarian_cancer_videos_kalindria

    In the meantime, I'm here if you have any questions or want to chat.

  • GregP_WN's Avatar

    GregP_WN wrote on Stellasmom's wall

    Welcome to WhatNext! We are happy you found us for support, but sorry for your reason for needing to be here. This is a great community of patients, survivors, caregivers, and their families. Lots of them are ready to help with any questions or issues you might have.

    If you have an issue right now you need help with, click on the questions link at the top of any page then ask a question about whatever you need help with. As soon as someone with experience with that issue sees it you will get some answers.

    If you need help with anything on the site please let me know, we are here to help you through this.

    All of us on the WhatNext Team wish you the best!

    GPierce
    WhatNext Community Mgr.
    3X Survivor

  • macfightsback's Avatar

    macfightsback wrote on Stellasmom's wall

    Welcome Stellasmom,
    I am happy you found a promising clinical trial. I am getting treatment for my 2nd reoccurrence with Doxil, Avastin and Carboplatin for 2 pulmonary nodules and an area on my left diaphragm. I am not a candidate for a clinical trial. I am glad you have joined us. I was diagnosed stage 3 C in July 2015. Feel free to ask any questions. We are here for you.

  • Lynne-I-Am's Avatar

    Lynne-I-Am wrote on Stellasmom's wall

    Hi there Stellasmom, welcome to WhatNext. I see you have mentioned clinical trial. Are you currently in a clinical trial? Helpful for us if you could fill in a little more information. Clear cell survivor- when were you diagnosed? I came to WhatNext in 2013 after being diagnosed with later stage ovarian cancer. I needed to connect with other survivors and learn about the journey ahead. WhatNext provided the helpful information I needed and I have benefited from the advice and support I have received. Look the site over. The site has expanded to include both blogs and videos. Do not hesitate to ask questions , there is a great community of survivors here to answer them. Any time you want to chat with me or any survivor just look them up on their wall. Wishing you better days ahead and here to talk anytime.

  • Stellasmom's Avatar

    Stellasmom shared an experience

    Clinical Trial (Currently on NRG-009): After 2 reoccurance of ovarian cancer clear cell I began a clinical trail. So far has been hard but I am responding well. I got 20% reduction in 2 small tumors in just 2 months. Getting ready for another scan I will keep you all posted. So I get Doxil, Avastin, Tecentriq ( immunotherapy )

    1 Comment
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      Thanks for sharing. I have had friends on Doxil with varying results and a friend who has been on Avastin and doing well so far. Have not heard about Tecentriq but think it is great they are trying immunotherapy now and adding to the arsenal of weapons to fight this crappy disease. Wishing you continued success with your clinical trial and yes, keep us posted on your progress. Sending wheelbarrows of support and a hug.

      2 months ago
  • DaveWaz's Avatar

    DaveWaz wrote on Stellasmom's wall

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter