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    stephanier asked a questionSarcoma - Adult Soft Tissue Cancer

    leiomysarcoma / retroperitoneal stage 4

    4 answers
    • carm's Avatar
      carm

      Stephanier, hello my name is Carm and I am an oncology/end of life nurse who specializes in gyne cancers so I have had patients with leiomyosarcomas of the uteri and peritoneal cavity. Although I am not a patient, if you have any questions that I can help with, by all means feel free to ask. You will find much support here. Welcome to the "What Next" family and best of luck to you in this new year, Carm.

      almost 5 years ago
    • chaffinch's Avatar
      chaffinch

      Hi Stephanier, I am responding to you because there don't seem to be many of us with exact diagnosis. I am 55, sarcoma 3, second occurrence diagnosed 12-12 (first occurrence misdiagnosed as begnign from hysterectomy pathology report 1-12). Second occurrence is 8 x 11 primary tumor plus 4 small tumors located in retroperitoneal in sygmoid loop. I had 4 infusions of taxotire and gemzar chemotherapy that shrunk my tumors over 30% Jan, Feb, March 13. My small 4 tumors don't show now on scans and my primary tumor is now small enough not have to have a colostomy when surgey is performed . Today will be my 8th of 25 IMRT radiation treatments. Surgery is next step.

      over 4 years ago
    • wvgal68's Avatar
      wvgal68

      I have stage IV uterine leiomyosarcoma. I just recently celebrated 5 years since diagnosis. I've had 3 major surgeries, including the initial hysterectomy, a total of 2 1/2 years of chemo, 4 different ones. Getting ready for my 4th surgery.

      over 4 years ago
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    stephanier posted an update

    i am 38 years old and i was diagnose nov. 2012 with stage four leiomysacorma in the retroperitoneal and it spreaded to the lungs so that made it stage four and i was wondering has anybody exp. this type of cancer lately pass or present i would like to here from you its all new to me and its scary XXX XXX but i coping with it i just pray and keep faith and keep it moving so please feel free to response anytime.

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    stephanier shared an experience

    Drug or Chemo Therapy (Chemotherapy): chemo is a great way to intake the medcine as long as you do waht they tell you to do to stop all side affects,

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    User: GregP_WN