• GregP_WN's Avatar

    GregP_WN wrote on Sterling's wall

    Hello and welcome, we are sorry for your diagnosis, but we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page, Take a look at it to get you started on some information. You will notice at the left side of that page a listing of most types of cancer. You can scroll down to find your diagnosis. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started with the help you need right now.

    https://www.whatnext.com/conditions/cancer/

    If you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the database to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site.

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    GregP 3X Survivor
    WhatNext Community Mgr

  • Sterling's Avatar

    Sterling asked a questionSkin Cancer - Non-Melanoma

    Who has cutaneous t-cell lymphoma, mycosis fungoides? Help me discuss. Pls

    • po18guy's Avatar
      po18guy

      Have you contacted the Cutaneous Lymphoma Foundation? A great resource for dealing with this rare cancer.

      https://www.clfoundation.org/

      Another resource is the T-Cell Leukemia Lymphoma Foundation.

      http://www.tcllfoundation.org/

      3 months ago
    • po18guy's Avatar
      po18guy

      Where are you located? Anywhere near the US west coast, Alaska or Hawaii? I ask because the T Cell Leukemia Lymphoma foundation is conducting patient education seminars in San Francisco, Anchorage, Honolulu and Seattle, hosted by world renowned T Cell specialist, Dr. Andrei Shustov. They are completely free if you can get there.

      3 months ago
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  • Sterling's Avatar

    Sterling started following

    User: GregP_WN

  • DaveWaz's Avatar

    DaveWaz wrote on Sterling's wall

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter