My husband has been taking Nexavar (800 mg/day) since October 2014. He is at this moment at the wound care clinic at our academic hospital. He has such severe reactions (rash that turns to open sores) that he has been not able to get out of bed for 3 days. But, other than that, he is mentally ok and he says if it weren't for the pain from the sores, he would feel fine. We continue on with the Nexavar because it is keeping his liver cancer stable. My best to you and your family. What sort of problems are you having? There may be some folks on this site that might be able to offer some remedies.
- Waco, TX
- Member Since Apr 2012
Their Diagnoses (2)
- Patient: Liver Cancer
- Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 5 years ago, Male, Age: 68
- View this journey (3 Experiences)
- Patient: Hepatocellular Carcinoma or Hepatocellular Cancer
- Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 5 years ago, Male, Age: 68, Stage II
- View this journey (1 Experience)
steve70x7 wrote on heltonchs's wall
Thank you so much for sharing on my question about Nexavar! Judy and I have decided to stop and I did Monday. It came to a point of quality of life vs longevity. Please understand, I don't recommend taking or not taking it. That is a very private choise to be made by both you and your husband. I was diagnosed 3 years ago and being a Christian I believe God knows best conserning each individual. Judy and I are now praying for you, your husband and your family.
If you would care to friend Judy or I on Facebook it's a good way to Private message questions and thought that should be kept private. I Pastor First Church of God in Waco, TX. There are several Steve Kreins on Facebook, so if you want, look for the old guy who lives in Waco TX. ;) Judy of course is listed as Judy Kreins. You can also reach us at [email redacted].
We would be honored and blessed to walk this road with you.
Steve and Judy Kreins
steve70x7 shared an experience
Drug or Chemo Therapy (Chemotherapy): I started on Nexavar 6 months ago. Nexavar doesn't cure liver cancer, it simply slows it down. I'm going on three year since being diagnosed and the Nexavar wasn't indicated until 6 months ago. Surgery and RFA Radio frequency Ablations have helped until now. Now I have too many tumors to count so we started the Nexavar and I've had two chemo emolizations, one in April and another in May. I'll find out in about a month if they helped. I am strongly considering stopping the Nexavar because of quality of life issues.
Nexavar, Yes or No?
steve70x7 posted an update
Sorry I've been out of touch. I was diagnosed with HCC liver cancer three years ago and I'm still kicking! God is good and I'll try to stay in contact with a group of very special people that I should have been there for to encourage you as others have encouraged me.
God bless you all!