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    StevenAronoff shared an experience

    Radiation (Internal radiation)

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    StevenAronoff shared an experience

    Drug or Chemo Therapy (Chemotherapy): I took Inlyta for two months along with a monthly injection of Xgeva. After two months I had an MRI, CT scan, and Bone Scan. These showed increased metastases, especially on my spine. The only good news was that my original metastatic tumor, the one that had been irradiated, showed no growth. My next step is radiation of several of the metastases that are on my spine, especially one that is growing inwards toward the spinal canal.

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    StevenAronoff wrote on walter's wall

    Walter, don't not begin treatment!, especially if you have the clear cell variety of the disease. I had a friend who was more or less paralyzed after her late stage diagnosis of breast cancer. She continued smoking and just let herself waste away and die, and that was totally unnecessary.

    My reaction to my diagnosis of metastatic renal cell carcinoma (at the age of 66) was 'GIVE ME MEDS!' None of the chemotherapy drugs I have taken/am taking have yet to work. I keep in close contact with my friends and family who are very supportive.

    Stage IV is very scary, I know. I chose to not ask what my stage was, although I'm fairly certain it is also IV. My attitude is that I'll do every thing I can to keep the disease at bay. I know the odds are against me, that survivorship is extremely low, especially with my papillary form of the disease, but survivorship is there for a lucky few.

    I know I'm rambling. I'll stop now. I hope you push for treatment, treatment that starts that day or the next.

    Steve Aronoff
    Bellingham WA

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    StevenAronoff shared an experience

    Procedure or Surgery (Lumbar Laminotomy): Alongside my cancer I also have spinal stenosis. Beginning a few weeks after my nephrectomy I had a lumbar laminotomy whose effects are difficult to define. There is something wrong with my hips. They give me a lot of pain when I move and sometimes at other times. In addition to the laminotomy, I have been getting steroid injections in my spine that are supposed to at least help with my pain. So far, they haven't helped much and my mobility is much compromised by the pain. I use a cane and a walker to help reduce the pain when I walk. They are somewhat effective.

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    StevenAronoff shared an experience

    Drug or Chemo Therapy (Chemotherapy): I started with Sutent and transitioned to Torisel, neither of which seemed to do anything. I'm currently on Inlyta, two pills a day, and a monthly injection of Xgeva (sp?). I have had no side effects, but nothing has done anything so far. I've only been on the Inlyta and Xgeva for a couple of weeks, so they have yet to be evaluated.

    1 Comment
    • SueRae1's Avatar
      SueRae1

      Have they tried Afintor? I was on it for 2 years and it kept my cancer stable, The only reason I am no longer on it, is that I was diagnosed with Metastasized Breast cancer in May of last year, so I was switched to infusion chemo to treat bothy. I was on sutent for 9 months, at first we had great results, but then it stopped working. Best of luck on your journey.

      about 4 years ago
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    StevenAronoff shared an experience

    Procedure or Surgery (Surgery): I had a nephrectomy that removed my left kidney with the primary tumor in it. Shortly afterward I passed a kidney stone (I have a history of this.).