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    User: LauraRem

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    Stew asked a questionLung Cancer

    Experiences as you deal with small cell lung cancer

    4 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      Hi Stew, I have nonsmall lung cancer, not small cell, but when I was on traditional chemo treatments, I didn't have much difference between the first round of chemo and the 8th, except for the amount of time it took for it to be infused. In the beginning, my clinic infused slowly to make sure I wasn't going to have any reactions to any of the drugs.

      I think I had scans every 3 months to see how the cancer was reacting to the treatment. As long as I was getting treatments, my tumors responded.

      For me, but every one of us is different, I did not have cumulative side effects. I was very sick during the first week after treatment with nausea and vomiting and constipation and horrible fatigue. I felt better in week 2 and even better in week 3. I didn't get neuropathy. I didn't lose my hair.

      Toward the end of treatment, I started to get depressed. The reason for the depression was that just about the time I started to feel pretty good, I was due back for another treatment ... I was knowingly and somewhat willingly making myself sick again. I wasn't expected to live but 4 months so I wondered if I wouldn't rather spend those months feeling pretty good. I considered quitting treatments. Fortunately, I did not or I would not be here today.

      I hope some people specifically with small cell lung cancer will respond, but all of us walk a similar road, but all of us also have our own very unique journey. I do have a friend who went through treatment for small cell lung cancer right before I was diagnosed and her experiences were quite similar to mine.

      27 days ago
    • carm's Avatar
      carm

      @Stew,
      Hello, I'm an oncology nurse so if you have any questions that you think I might be able to help you with. If you have a diagnosis of small cell then I'm going to assume you might be on etoposide and carboplatin. The scans will show whether the regimen has had some impact and whether you need additional cycles. Everyone here has given you wonderful insight. Best of luck to you.

      26 days ago
    • cards7up's Avatar
      cards7up

      It looks like from your profile you have extensive and had surgery. That's unusual for ext SCLC. What surgery was done and where is your cancer? Are you also doing radiation or just chemo? Normal chemo for ESCLC is cisplatin or carboplatin with etoposide. You've done 4 so far and they sometimes go up to 6 if the patient is tolerating it well. Have you had a scan yet? More info helps us help you, that's why all the questions. Wishing you all the best.

      23 days ago
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    Stew wrote on Calicocat's wall

    Hi Calicocat! I also have small cell lung cancer and I hope
    you will reach out to me or others in this group as you
    take this journey. We all need information and support.
    Best wishes
    Stew