• Stew's Avatar

    Stew asked a questionLung Cancer

    Hoping for information

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    • Stew's Avatar
      Stew

      Thank you. I look forward to their insight.

      about 1 month ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I am on Opdivo but I have nonsmall cell lung cancer. I'm not too familiar with how people with SCLC are doing on it, but I imagine it is similar to those of us with NSCLC. I've been on it since July 2013, with only a brief respite while I had a wayward tumor eradicated in July 2017.

      My tumors haven't disappeared, but they've been mostly stable since I got on Opdivo. I have few side effects - hypothyroidsim, a bit of fatigue, weight gain ... nothing very serious. I have recently developed a rash on my face and the bottom of my feet have been feeling like I walked on fire ... probably side-effects from the Opdivo (I'll find out on Monday when I see my oncologist).

      At any rate, I was originally supposed to live 4 months and here I am over 6 years later ... and I have been able to mostly continue my life much like I lived it prior to my diagnosis. I pray for you a similar response!

      about 1 month ago
    • carm's Avatar
      carm

      Hello, although I am not a patient, I am an oncology nurse. I am familiar with that regimen for small cell lung cancer. That was initiated as a clinical trial called the "Checkmate 032 study." I have had a few patients who did very well with this combination of a checkpoint inhibitor and a PD1 blocker. Best of luck to you.

      about 1 month ago
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    Stew wrote on Raynbow's wall

    Welcome Raynbow!
    Congratulations on joining this community. You will find information of interest and others having similar experiences.

    Please feel free to reach out to me to visit about experiences, ask questions, etc. I also have small cell lung cancer, having been diagnosed June, 2018.