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    Stew started following

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    Decision Point

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    Stew shared an experience

    Celebration (Remission): In December I had 2nd CT scan and my lung is still clear of tumors. Yea!

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    Stew asked a questionLung Cancer

    Asking for your feedback on Dr. recommended treatment

    8 answers
    • gmorcutt's Avatar
      gmorcutt

      Stew, I would definitely seek a second opinion. If I were in your shoes, I would say NO to prophylactic radiation. I’ve never heard of such a thing for lung cancer! (I’m an 8.5 year survivor.) If you’ve never had a brain MRI, you should, and continue to get one every six months. (My experience.) If you ever do end up with brain mets, they can do pinpoint radiation on those spots. I’ve always been told that whole brain radiation is not acceptable as there can be many cognitive side effects. If you have a targeted mutation, often switching medications can shrink brain mets. But again, I have to emphasize that prophylactic brain radiation is not part of any protocol I’ve ever heard of!

      7 days ago
    • Stew's Avatar
      Stew

      Thanks to each of you for your replies. I sincerely appreciate your taking an interest and responding.

      My small cell lung cancer is extensive, stage 4, and so far I have had two MRI’s (the last one in Dec.) of my brain since it is one of the places this cancer migrates to, and both have been clear.

      7 days ago
    • Paperpusher's Avatar
      Paperpusher

      Stew for what it's worth, my husband's sclc is also one that likes to go to the brain. He was diagnosed December 2013 and hasn't had a brain MRI yet. No one has suggested it so this time I'm asking for it since I've seen changes in his cognitive abilities-pushing the wrong button on the remote, hesitancy to drive as far as he used to, more frustration with tech stuff, etc. I'm glad your doctor has been on top of it.

      6 days ago
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    Stew wrote on LiSATYRRELL's wall

    Hello LiSATYRRELL,
    I noticed your profile this morning and just wanted to connect. I was diagnosed with small cell in June, 2018 and your posts are encouraging for me.
    After all this time, are you still receiving treatments?