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    User: EllasDaddy

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    Question: Opdivo

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    Stew asked a questionLung Cancer

    Opdivo

    4 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      I was on Opdivo from July 2013 until May 2019 for NSCLC. I got off of it because i started developing a rash and had a couple of other issues that may have been Opdivo related: swelling and dry eyes.

      The rash went away after stopping treatment. The other 2 issues didn't.

      about 1 month ago
    • Dianem's Avatar
      Dianem

      Have stage 4 lung cancer from 2013. for 2 years, taken off because it stopped working. Now have been on opdivo for more than 3 years. Biggest side effect is neuropathy and arthritis. Livewithcancer, how are you doing? Think of you often pray for you always....

      about 1 month ago
    • Stew's Avatar
      Stew

      Thank you all for replying to my post.

      It’s helpful to learn what others have dealt with when on the same treatment. Each of us react differently while going through this.

      about 1 month ago
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    User: brizzjo

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    Stew asked a questionLung Cancer

    Hoping for information

    4 answers
    • Stew's Avatar
      Stew

      Thank you. I look forward to their insight.

      7 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I am on Opdivo but I have nonsmall cell lung cancer. I'm not too familiar with how people with SCLC are doing on it, but I imagine it is similar to those of us with NSCLC. I've been on it since July 2013, with only a brief respite while I had a wayward tumor eradicated in July 2017.

      My tumors haven't disappeared, but they've been mostly stable since I got on Opdivo. I have few side effects - hypothyroidsim, a bit of fatigue, weight gain ... nothing very serious. I have recently developed a rash on my face and the bottom of my feet have been feeling like I walked on fire ... probably side-effects from the Opdivo (I'll find out on Monday when I see my oncologist).

      At any rate, I was originally supposed to live 4 months and here I am over 6 years later ... and I have been able to mostly continue my life much like I lived it prior to my diagnosis. I pray for you a similar response!

      7 months ago
    • carm's Avatar
      carm

      Hello, although I am not a patient, I am an oncology nurse. I am familiar with that regimen for small cell lung cancer. That was initiated as a clinical trial called the "Checkmate 032 study." I have had a few patients who did very well with this combination of a checkpoint inhibitor and a PD1 blocker. Best of luck to you.

      7 months ago