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    Drug or Chemo Therapy (Chemotherapy): Well another chemo pill shot down...Zydelig won't work for me. Apparently it is messing with my liver enzymes, way to high. So my oncologist has decided to take me off that med and keep me on my Rituxin but instead of a 4-week treatment plan every 6 mths I have to have it every 2-weeks now. I never considered what effects all this medication does to other organs in the body until now. I had to trust that my oncologist had/has my best interest at heart at all times. Finding out that I have a rare harder to treat kind of the CLL doesn't make dealing with it any easier. All this time...10 years!...and had no idea! It's getting harder to fight but I'm NOT giving up! It is difficult because of having to have yet another port put in...this is my 4th one (had a new one put in last year and that didn't last long) but my surgeon was excellent. Still fighting and still going on as usual.

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    Hi Lindyver welcome to the group! The people here are great and it has helpful information. I joined because I didn't know anyone who had what I had and had a hard time understanding what to expect. I'm so glad I joined. I also have CLL and am 58. I have had it for a little over 10 years and have had several different treatments so if I can help please let me know. No matter what I just keep fighting! God bless you and your family on this journey.

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      Lindyver

      Thank you! I tolerated the first cycle well and am taking it day by day and enjoying my time off till the next cycle.

      4 months ago
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