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    stripe34 asked a questionNon-Hodgkin Lymphoma (NHL)

    2015 AITL - Angioimmunoblastic T-Cell Lymphoma Patients - Roll Call, Check In, How are you doing?

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      2015 AITL (dx 5/1/2012), RCHOP x2 & CHOP x3 (partial response). 8/2012 clinical trial Sorefanib (Nexavar) partial response. MRD SCT - Matched Related Donor Allogeneic Stem Cell (Bone Marrow) transplant 11/15/2015. Chronic Graft vs. Host disease diagnosed May 2013 (six months after transplant: started upon taper of tacrolimus). Mostly controlled since then with prednisone, tacrolimus, and supportive meds. Flares occasionally worse, especially with stress. AITL considered in remission from time of transplant - 2+ years as of 3/2015.

      over 1 year ago
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      As you know...

      07/08 DX PTCL - NOS, 4B. >50 tumors + BMI.
      08/08-12/08 4 cycles CHOEP + 4 cycles GND.
      02/09 Relapse.
      03/09-06/13 Clinical trial of Romidepsin. NED for 64 (28 day) cycles.
      07/13 Second relapse. Multi auto-immune symptoms.
      08/13 - 02/14 Romidepsin increased, but stopped - lack of response. Resolved spontaneously.
      09/14 Third relapse with visible nodes.
      10/06/14 One cycle Belinostat. Symptoms worsened. Stopped.
      10/13/14 Re-classed to AngioImmunoblastic T-Cell Lymphoma.
      10/25/14 Entered trial of Alisertib (MLN8237). Failed 01/05/14
      01/12/15 Belinostat resumed. Failed 02/23/15
      02/24/15 Pralatrexate started.
      03/12/15 Good abdominal scan, but Pralatrexate is now beating both of us up! Leucovorin rescue being employed 24 hours post-infusion.
      I am now in my sixth regimen and on my twelfth drug.

      over 1 year ago
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    stripe34 shared an experience

    Other Care (Psychosocial): Psychologist and potential psychiatrist visits. Experiencing anxiety about cancer relapse, chronic GvHD symptoms/management/future, medical tests and procedures, and pain management

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    stripe34 shared an experience

    Other Care (cGvHD - Chronic Graft Vs. Host Disease): Managed with prednisone, tacrolimus, and prophylactics (antibacterial, antiviral, antifungal), plus supportive (magnesium, Vit D, Calcium citrate) since GvHD diagnosed May 2013

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    stripe34 wrote on Charlie_pollet's wall

    Hi Charlie - - just found you on WhatNext as another AITL survivor - hope you are well! - Christy

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    stripe34 wrote on vou_ficar's wall

    Oops sorry I messed up your name - Vou?