• suggi's Avatar

    suggi wrote on geekling's wall

    Updat - I brlieve the doctor was referring to the Whipple surgery which seems to be the only choice so far - you lose around 50 lbs with it as they take everythibg out and just attach your stomach with the valve removed with part of the stomach to your small intestine and you get stomach dumping. Some fare better than others after but I have seen a majority of horrer stories, Scarey no matter what you do I guess. I am on a desperate quest to find a doctor that could operate and take it out without doing the whole Whipple thing. If I lost 50 lbs I would be around 60 lbs or less.

  • suggi's Avatar

    suggi started following

    User: geekling

  • suggi's Avatar

    suggi wrote on geekling's wall

    geeking
    Thanks for answering my post - I too am 5'4" and m considered underweight. Best I could do when 9 months pregnant was 125 lbs. Being i am 77 years old maybe with the "new Govt rules and regulations" I no longer matter. I will keep hoping. Glad you are OK now.

    Please post back. Thanks.

  • suggi's Avatar
  • suggi's Avatar

    suggi asked a questionBile Duct (Cholangiocarcinoma) Cancer

    Is there any hope if you have a precancerous Type Ic choledochal cyst and not a candidate for surgery

    10 answers
    • suggi's Avatar
      suggi

      geking - I am also 5'4" like you and am considered "underweight". I have experimented with food and can not eat a lot of fiber so more of a low fiber diet which will not help me I know -- can not eat a lot of veggies and no salads, no tomatoe sauce, etc, chocolate and/or coffee only when I become too constipated as I get inflammation in the lower sigmoid/ rectal area if I lean towards diarrehea (also have IBS) plus trying to gain a little weight. So, I do eat white bread, and some easy on the gut processed food which I presume now is bad for you. I do drink 2 Ensure Plus a day in addition to my meals but not in my metabolism to gain weight - i burn it off with very little effort. I do not live a sendatory life but I do not get enough sleep and I know that does not help and I can't take sleeping pills.

      Sleep problems started with a sick Mom in another state when I was still working and running to take care of her inbetween as she refused to leave her home and come to MA -- she was in NY. I never seemed to fully recover from the few years of just running, running, and finally running on empty.,,,no siblings so all on me.

      I also was one of those "experimental " kids that got radiation for an enlarged thymus gland at birth to shrink it but instead it completely destroyed it and the thymus is an infants immune system and again at about age 6 to get rid of the scar tisssue the first created. It was the new mircle cure and unmeasured cobalt and then the doctor finally found out how bad it was and told my Mom i would be dead by age 16 or if I survived I should neer have kids as they would be deformed. My allergist/asthma doc says a lot of my health issues and many drug allergies stem from this cobalt years ago. I recently had a friend die of thyroid cancer who was also a cobalt kid. I have thyroid nodules they are watching and almost died a few years back from a thyroid storm - was in the telemetry unit of the hospital for 4 days as they thought I was going to have a heart attack and was given the radioactive iodine pill that brought my numbers into range. They also think it was the cause of my BC. I walk for my osteoporosis and take Evista as that is the only one I am not allergic to. So, anyway -- I am kind of at aloss re: diet -- I have tried veggies, etc and paid for it colon wise so, yes, I do need help. Right now I want to gain weight but do not have much sugar or dairy. The most I ever weighed was 125 lbs at 9 months pregnant.

      over 3 years ago
    • suggi's Avatar
      suggi

      Sorry - spelled your name wrong last post - just wanted to add -- they are blaming the chronic leukopenia on the infant radiation also. They do not know if I had Thoroplast in addition either which is a known cause of bile duct cancer and some others. All those records are gone -- probably purposly destroyed. That was abandoned by the end of 1948 or so, Being 77 so far I may have been poisoned by there stupidity but have overcome a lot and the rest I live with, There is a site for infant radiation back in the day and I was amazed at all the input and diseses and cancers it caused. You can tell by the doctor telling my Mom that ....that they knew they made a mistake, esp. those like me who were over radiated and instead of shrinkage the thymus was completely irradicated. Some folks actually looked into compensation but lawyers told them "lost cause".

      over 3 years ago
    • suggi's Avatar
      suggi

      I found the link for infant radiation if anyone is interested as there may be more on this site who had that radiation done. It caused a lot of problems = my sister actually died at age 16 from a pituatary problem stemming from infant radiation and I also have a deformed upper pallate in my mouth so if I ever needed false teeth I would have to have my complete upper bone structure redone. I do not know if I am allowed to post it here but I believe there is some way to do it privately.

      over 3 years ago
  • suggi's Avatar

    suggi started following

    User: mejenni