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    Sur2210 started following

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    Sur2210 asked a questionSmall Intestine Cancer

    Doctors opinion

    6 answers
    • Rondee's Avatar
      Rondee

      Hi!

      My primary was also in my ileum, small intestines! Maybe you could try Lantreotide? I take 40 mgs of Sando Lar and I dont have side effects like you do! Had to have my gall bladder out due to multiple stones! I have problems with blood sugar levels crashing from time to time! Must be difficult for you! What has your doctor said? I have been advised to stay on it as it does show reduction of tumor burden! I feel for you! Keep in touch and let me know how you are doing!

      over 6 years ago
    • Grammyma's Avatar
      Grammyma

      Hello, Sur2210. I, too, have carcinoid cancer. It started like yours did, but mets. to liver before they found the original tumor. I've been on Sandostatin LAR for over 10 years, but don't have the side effects you have. I've been told that I'll be on it for the rest of my life. I recently had a flareup of a tumor on my liver. Had 2 rounds of chemoembolization. I will have a MRI in mid-March to check on how well they worked. I would ask your doctor. Take care, prayers.

      over 6 years ago
    • Beeps' Avatar
      Beeps

      Hi Surr: I've been on Sando LAR for 3yrs. If I recall properly... The info. On this drug says... If you experience blurred vision to contact your doctor! I'm thinking that this is one of the side effects that is not acceptable. FDA just approved Lanreotide... Maybe that will work better for you??
      Good luck! Blessings!

      over 6 years ago
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    Question: Doctors opinion

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    Sur2210 asked a questionLiver Cancer

    What would you do if your doctor said your cancer will always come back?

    7 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      We have a friend who was hospitalized with widespread stomach cancer. He wasn't expected to live more than a few months, at most. Some nurses came in his room and were talking about him as if he was already dead. He sat up and ordered them out of his room. Then, he told his doctor that if anyone else came into his room with any attitude except that he was going to get well, he would sue. That was at least 20 years ago and he is still cancer-free. In short, doctors are NOT God. He can say most of the time the cancer returns, but he can't be certain yours will. I would look for another doctor.

      over 6 years ago
    • BabsWon's Avatar
      BabsWon

      If that's the case, I would be forced to deal with it. A co-worker's mother-in-law has cancer that keeps returning, and she has chemo every so often to keep the tumors from getting larger. But, her oncologist told her there will come a time when the chemo will not work any longer. Until then, you keep fighting & living life.

      over 6 years ago
    • cam32505's Avatar
      cam32505

      Get your second opinion, maybe third, then get on with your life.

      over 6 years ago