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    survivor92 asked a questionBreast Cancer

    Does a cold cap to prevent hair loss during chemo affect rate of recurrence?

    4 answers
    • leepenn's Avatar
      leepenn

      what i've been told is that breast cancer spreading to the scalp nearly never happens… same with finger tips - so people sometimes ice their finger tips during chemo to prevent problems with finger nails and neuropathy… same with preventing mouthsores - people often suck / chew on ice to prevent mouth sores from popping up.

      i've seen mixed reports as to whether one keeps hair or not… the idea is that the circulation tot he scalp is minimized by keeping the scalp cold. personally, i was already so cold during chemo… i can't imagine having a cold thing on my head.

      for me, the hair loss wasn't that horrible. but for some, it's like adding horrible insult to injury…

      well - that's what i know. i hope that's helpful… hopefully, she's talked to her docs about using the cold cap and has made an informed decision that works best for her. if you can, just be supportive…

      good luck!

      over 8 years ago
    • Beatrice's Avatar
      Beatrice

      My friend - who went through this a couple of years ago - told me if you get chemo, be sure to get cold mitts for your hands and your feet. She only got for the hands and says her feet have had problems ever since. I've not heard about the cold cap for your head but I feel like that would also be a good thing for your brain, not just your hair. Have to look more into this.

      over 8 years ago
    • lilymadeline's Avatar
      lilymadeline

      I just asked my oncologist this question again and he said that the jury is still out! In other words they just don't know yet. But my cancer center does not offer the cold caps for just this reason, in case it affects treatment they aren't going to take a chance until all the facts are in. And my oncologist said something similar to what yours did- because it isn't allowing the chemo into that area he is concerned that it might affect survival rate as well.....which again is why my cancer center at Cedars Sinai isn't offering them, but nearby UCLA is and that is a very good cancer center....so we just don't know yet. In my case I decided to lose my hair and have treatment at Cedars, because after all hair always grows back and I figured it wasn't worth taking any risk just in case, but others are more attached to their hair.

      over 8 years ago
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    survivor92 posted an update

    Must tell you all that I've been out of treatment and cancer-free for 20+ years. Please don't think I'm dealing with a new diagnosis. For the time being, I'm fine.

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      This is great we are happy to have you with us, we have several long term survivors here that help a great deal by inspiring and answering questions. I'm working on my 26th year so far.

      over 8 years ago
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    survivor92 shared an experience

    Other Care (Psychosocial): Consulted Psycho-Oncologist a few years after treatment ended. The diagnoses and regular checkups and tests were making me anxious and depressed.

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    survivor92 shared an experience

    Loss (Personal - felt vulnarable in many areas of life.)